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Joined: Feb 2010
Posts: 1,127
Steel_AS_Kicker
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Steel_AS_Kicker
Joined: Feb 2010
Posts: 1,127 |
Sorry to hear you are feeling so lowly. You have certainly been thrown a few curve balls over the past couple of years. I think it is time for you to hit one out of the park.
Sending all the well wishes in the world.
Take care beautiful lady.
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Thank you so much, Trish...  I'm really putting everything I've got into beating this but it's been a rough night...AS is kicking my tush right now... I hope all is well with you, I know you've been through a lot too, yet you troop on through!!  Big hugs & so much love, my friend... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
Michelle,
You hang in there with that chemo. It will knock you down. You just rest girl. You have a long road so go easy on yourself.
My sleep study was a blow out! Nice digs though! They mainly wanted to do a day study but I take meds for A.D.D. too and said that my Dr. should have taken me off of them before ordering a day study so I just jumped in for the night study which showed hardly a thing. Ready to go home and get in my pod!
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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Joined: Jan 2009
Posts: 4,501 Likes: 1
Supreme_AS_Kicker
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Supreme_AS_Kicker
Joined: Jan 2009
Posts: 4,501 Likes: 1 |
I hope the docs are watching your anemia, blood counts....ask them how often they are checking your counts and at what point would you need transfusion. If you are feeling sufficiently tired, it's time they consider the effects of the chemo/radiation vs the blood counts and not just say that it's the chemo causing the tiredness. If you could be a little less tired with a transfusion (and its attendant risks--you know it's not without risk), would you want to do it? Think about it. Chemo is a finite period of time and you will eventually recover your strength, but right now is where you are living. And big hugs to you, Michelle. Be strong!!
DX: Psoriatic Arthritis, Osteoporosis, Psoriasis
Meds: MTX since Oct 2009, 15mg/week. Cimzia-restarted after 2 yrs away.
Epidural Steroid Injections x8; Lumbar Radiofreq Ablation x2
SIJ Steroid Injection x3; Bilateral Radiofreq Ablation SIJ x9
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Thanks so much Pea...  Big hugs, girlfriend...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi rumble...perfect advice, as it turns out, severe anemia is the problem, I'm feeling a bit better this morning and I'm up 2 pounds...progress!!! Thanks for all the good, sound advice...big hugs, Michelle
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Feb 2011
Posts: 1,968
Captain_AS_Kicker
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OP
Captain_AS_Kicker
Joined: Feb 2011
Posts: 1,968 |
Good luck tomorrow on your Chemo Michelle. I hope you are tolerating it alright. I hope you have met some nice people in the infusion section if that is where you are getting your chemo. Oh yea, and some good nurses. Glad to see you are putting some pounds on!!!! Wish I could give you some of mine, then we would both look right! : }
Pea
Diagnosed with A.S. 29 year's ago.
Diagnosed with Fibro 10 year's ago.
Remicade, Intrathecal Pain Pump 2013
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Joined: Sep 2001
Posts: 8,397
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 8,397 |
Michelle,
I did not get over to Sturgis, blind in one eye, I have had the diarrhea, so I nixed it.
Nice to visit with you. If I can help please, let me know,
If love would heal you; the posts from this site in one week would have you on your feet!!!!
Lon
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Thanks Pea, I really appreciate it I hope everything's going better with you it sounds like its doing better sounds like you're on the right track I'm really excited about gaining weight... even though it's just a couple of pounds it's progress right!!! big hugs and much love ... Michelle
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Lon...you're so right...if love could heal... I'm so sorry that you didn't make it to Sturgis....and I really enjoyed visiting with you too!!! Big hugs & much love, my friend!! Michelle
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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