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Oct 6th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Jun 2006
Posts: 29
Member
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Member
Joined: Jun 2006
Posts: 29 |
crud Lon,
Sorry bout late post, but yours really hits the nail on the head. I have also gone vego for 8 months, so have been starting to blame that. Blood test results next week, so will test out the platelets. Nice to know that this cripping malaise is not just mine. At moment, I can't even walk the dog. Mowing part of the lawn (cannnot do whole thing) is like a huge victory. Thanks for your help. I think you are right about FORCING YOURSELF to ge out and do stuff. It is like a war this thing. You tough it out with a macabre sense of humour or you just get PTSD. Will aim to walk dog and go for bicycle ride tomorrow. cheers.
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Joined: Jun 2011
Posts: 63
Active_Member
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Active_Member
Joined: Jun 2011
Posts: 63 |
The tiredness is soooooo frustrating, when everyone and everything wants looking after and although you love them with all your heart you just want to scream at them and say "COOK YOUR OWN TEA FOR A CHANGE, IRON YOUR OWN CLOTHES, YOU FEED THE CAT AND THE RABBITS AND THE CHICKENS, THEN DO EVERYTHING ELSE I DO BECAUSE I JUST CANT BE BOTHERED" (I even feel guilty putting that on my post lol).
My family just dont seem to understand that AS is not just a back ache.
Dx AS Feb 2011
Dx Posterior Scleritis 2010
Vitamin D and calcium insufficient
Started HUMIRA injections (June 2011) stopped (oct 2011)
Started ENBREL injections (Jan 2012)
dx pernicious anemia sept 2011
possible psoratic arthritis 2012
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Joined: Mar 2011
Posts: 273
Third_Degree_AS_Kicker
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Third_Degree_AS_Kicker
Joined: Mar 2011
Posts: 273 |
When i am that fatigued i start taking vegetable based iron supplements. i am always surprised how much that helps... doesnt help waking up in pain which is exhausting but usually for me goes away after being up and moving for a bit.
Diagnosed Fibromyalgia 2004
Diagnosed Ankylosing Spodylitis Sept 2011.
Vertigo Since October 21 2012
Humira June 2012
Spending Each day using it to the full to help people in my community have hope, the only hope that keeps me going despite pain and fatigue every day most of the day.
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