Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group New to this and bit nervous!

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Hi all,

I am a 43 year old in the UK who was diagnosed with AS at 39 after at least 18 years of being told there was nothing wrong with me. Thankfully for me Inow know what I have and always though that woukd solve the problem of course you all know it doesn't just sometimes makes you more aware of the problems that may lay ahead.

I have never spoke on anything like this before (although did reply to someone earlier), and am hoping that the support of people with the same issues may help me in some way.

I am lucky to teach part time and have a great husband, children, family and amazing friends but sometimes still feel that nobody really understands. Am I going mad or does anyone else feel like this?

Keep smiling. X

Welcome to the family.......yes we understand exactly how you feel and how others relate to you..........but remember this you are the best looking woman in the world (I am the best looking man..........ahaaaaaaaaa) and you are the boss of AS.


Lots here with sensible tips and advice; a veritable treasure trove of AS goodies within these walls........welcome. Where in UK?

Hi, welcome here from another UK member. I'm probably a long way from you. I'm a long way from anyone here in the north isles of Scotland.

This is a great message board. Feel free to ask anything, browse the old posts, or just let us know how you are getting on. Hope that having a diagnosis does help get you better access to treatments now.

Thanks to you both for the encouraging messages its strnge how nice it is to hear from people with the same thing.

I am from Derbyshire in the UK, not far from one of you but a few miles from the other. Our son is in Aberdeen at uni always seems cold in Scotland, ha ha.

Can't complain with the treatment, consultants or support I get from medical profession.

Thanks again off out for meal with my sisters now.

Hey there,

Glad you found us, your story very similar to many others here. This is a place to vent when needed, learn and also laugh at times.

I have learned quite a bit from this site, the more you learn the more you may benefit from treatment options and other tricks.

Take care,

Tim

Thanks for your kind words Tim.

Welcome!

Hi uksufferer,
Welcome to the Kickas.org forum,
Holey cow, 18 years of not knowing is a long time! I know it is easier said than done, but my advice is to try to not be nervous and worry about what lyes ahead. You survived 18 years of not knowing already, and all that has changed for now is the name. You can soon look forward to better treatments, a doctor who now realizes how to treat your condition, and better support and understanding from friends, family, and people on the internet such as the nice people here.



You aren't going mad, there are some people in my life who don't understand either. It's just that they don't know how to deal with the fact that you are always hurting, and they don't know what they can say or do to help ease the pain. At least now they know what the name is, which is a great start. See if you can invite your friends and family to read certain things about Ankylosing Spondylitis to help them better understand the condition.

Take care,
James

Hi there and welcome to KA.

I was 38 when I was diagnosed and had been experiencing the signs of AS for over 20 years. Nobody, least of all me, realized that I was dealing with more than strained muscles and a bad back.

I'm glad you found us.

Hugs,

Hi uks and welcome to KA, it's a great place, full of wonderful people, support and information... You're not mad, it's very difficult for people to understand what we go through...my husband asked me one day what it feels like and I told him, "That would be like trying to explain to someone what it feels like to be shot in the foot...that's too hard to 'truly capture' in words....I think I'd just have to shoot you in the foot!"