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Joined: Feb 2010
Posts: 1,046
Iron_AS_Kicker
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Iron_AS_Kicker
Joined: Feb 2010
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do u take colostrum and glutamine? or do u know of starch free ones? I take boswellia from Pure Encapsulations because its starch free, so I'm planning to add glutamine on my next refill http://www.purecaps.com/itemdy00.asp?t1=lg12Looking into the colostrum supplement more, there is one thing I found that could potentially be a problem to us -- along with the good stuff, it has oligosaccharide type of carbs which might boost klebsiella since they are so carb-loving http://www.raysahelian.com/colostrum.htmlSo I'm going to give glutamine another try (now that I'm on the NSD) and holding off on the colostrum.
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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Feb 2010
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Hi Alinus I am interested to know why you think this will not help with AS. It is my understanding and belief that AS and the gut go hand in hand. If you have an allergy or sensitivity to certain foods, then it is pretty easy to cut those foods out and carry on with your life. But what if you have this problem with whole groups of foods, until what you can eat becomes very limited? You have to find another approach to dealing with the problem. Using enzymes to help digest certain foods and increasing flora in the gut, seem to be options worth pursing, in my opinion. Just one other thing, not meaning to interfer (I know Sunny can speak for herself) but I just wanted to point out that Sunny has AS pains in her neck, shoulders, back and hips - these symptoms get worse as well as her knees swelling up, as a direct result of eating certain foods. It is not specifically a gut reaction. So I would argue that reducing the food sensitivity issue would indeed help her AS pains. I am happy to be proved wrong  I desperately want to try to help Sunny with this ongoing and worsening problem, the last thing I would want to do it make her worse. She has consulted a doctor though and is reading up on the subject extensively. How are you doing at the moment btw Alinus?
KickAS and help others do the same!
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Joined: Jan 2010
Posts: 839
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Jan 2010
Posts: 839 |
Hi Alinus
I am interested to know why you think this will not help with AS. It is my understanding and belief that AS and the gut go hand in hand. I agree with your assumption linking gut to AS but only if we speak of immune reactions to specific antigens from our bacterial flora. Regarding my statement, I speak from experience - tested every digestive enzyme on the market - it does not help my AS and it never did. I did not found any reliable scientific data regarding artritis and digestive enzymes except for bromelain - wich made me worse. This is my one year personal experience. I did not tell Sunny that enzymes will not help her, i really don't know. What i did tell her is that it will not help her with her AS as a result of my personal experience. Also suggested to use them with caution and with a medical aproval. What she does or understands from my message is not my problem. If you have an allergy or sensitivity to certain foods, then it is pretty easy to cut those foods out and carry on with your life. But what if you have this problem with whole groups of foods, until what you can eat becomes very limited? You have to find another approach to dealing with the problem. Using enzymes to help digest certain foods and increasing flora in the gut, seem to be options worth pursing, in my opinion.
This is why i've recommended sunny the york test. York test is not about allergy foods - it's about intollerance to foods. There is a small difference there. Anyway - certain foods can trigger lG response due to intollerance even if they are taken in small qtties. If the immune system is already inflamming ourselves, add this reaction to the AS and you will see an increse of inflammation all over the body. As a matter of fact i am under a verry limited diet - maybe same situation as Sunny is but for different reasons. I undersand her need to solve her problem - but i adviced caution and a rational approach of the problem (nutrition tests, talking to nutritionists&immunologists and so on). Just one other thing, not meaning to interfer (I know Sunny can speak for herself) but I just wanted to point out that Sunny has AS pains in her neck, shoulders, back and hips - these symptoms get worse as well as her knees swelling up, as a direct result of eating certain foods. It is not specifically a gut reaction. So I would argue that reducing the food sensitivity issue would indeed help her AS pains. It is precisely a gut reaction to certain proteins&antigens from those foods. Yes, reducing the food sensitivity issue will help her lower the inflammation. But taking enzymes do not get read of food intolerance, only reduce it if possible and if taking the right enzymes for the right foods that produce intolerance. - resetting the lG's immune system memmory (avoinding those foods for at least 3-6 months) probably will decrease/stop the inflammation caused by food intolerance.. Usualy people intolerant to certain foods find out that avoiding those foods for ever is the best thing to do. I never heard enzymes will help increase gut flora. Probably using them will trigger in a verry long run a change of bacterial flora since some species will dissapear for the lack of substances that sustained them. It may help her diggest better specific foods wich can trigger immune reactions. But as i've read - even small quantities of those proteins/antigens can trigger or sustain an already existing immune response, so if we take into consideration the fact that the mere presence of those proteins/antigens will trigger immune response, the conclusion is evident to me. But i am no doctor, i just post my personal opinions. I am happy to be proved wrong  I desperately want to try to help Sunny with this ongoing and worsening problem, the last thing I would want to do it make her worse. She has consulted a doctor though and is reading up on the subject extensively. I also try the same thing, not to make her worse, by advicing caution, medical surveliance and a moderate optimism to this new approach. How are you doing at the moment btw Alinus?
Well, thank you for asking. Achieved UC remission with SCD/NSD diet moddified for my needs. Reduced my UC meddications. Taking those enzymes i've talked about earlier to help digestion since UC people tend to have a faster digestion and sometimes do not absorb the needed nutrients in order to sustain their boddy. Curently struggling with an AS flare wich strangely ignited after the last colonoscopy...(usualy I tend to feel better after a colonoscopy). Asking my self same questions Sunny does - what foods i eat makes my AS flare at this moment. Is it a food reaction, a stress reaction and so on. Asking if my antidepressant medication is still doing it's job. How are you? P.S. Too bad you people don' speak romanian  Our little chat here would be more articulated and clear at least from my point.
34. Some rheumys say AS stage 1-2 some others say USpA Also UC - rectocolitis. UC curently in remission since feb 2011. AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now... Modified NSD/SCD. Cook your own ! ____________________________________________________________ Mesalazine-Salofalk 500 mg/day And the list of my medication has become verry short after some years on this diet
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Joined: May 2010
Posts: 1,279
Copper_AS_Kicker
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OP
Copper_AS_Kicker
Joined: May 2010
Posts: 1,279 |
hi annette, sounds like we have a similar history and currant plan. i hope it works for u. keep us posted on how its going. mmmm colon cleansing lol. *raises hand* i want one! as u, most folks DO say they feel better after this procedure. did u get a probiotic flush with it? i swear i heard someone say they can do that too. ya know? i hate reading lol its not a strong point for me but when it comes to my health, i am a reading maniac! ill check out the book thanks for your 2 cents! sunny
AS & Fibro. NSD + no sugar
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Joined: May 2010
Posts: 1,279
Copper_AS_Kicker
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OP
Copper_AS_Kicker
Joined: May 2010
Posts: 1,279 |
sjlc, ahhh i see. i need boswellia and cats claw so thanks for the starch free source. ive recently learned that even though the product may not have fillers, the capsule itself could be starchy  usually veg caps. found this out with enzymedica. they pride themselves on no fillers but the cap is made from pine. they said it was ok to break them open and take straight. i thought id check about gelatin caps. u can purchase empty ones to fill too. i know some caps r designed to break down a certain way so that would have to be considered, but at least theres options. of what i ordered i still dont have glutamine so thats next on my list.
AS & Fibro. NSD + no sugar
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Joined: May 2010
Posts: 1,279
Copper_AS_Kicker
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OP
Copper_AS_Kicker
Joined: May 2010
Posts: 1,279 |
hi alinus,
in reading posts from u over the kast several months i do understand how to take u. if u look at the first part of your statement u will clearly see that u did say it would not help with my AS. maybe thats not how u meant it but thats how u wrote it. aside from that i do appreciate u sharing your experiences and i do learn from u. regardless of language barriers we r all here for the same reason. l as for a 'rational' approach... ive been doing that for 14 years and look where im at. im eating meat, eggs, fat, pineapple, raisins, broccoli and a glass of lactase milk (introduced again recently) everyday and have been for nearly a month! im not waiting around for someone to 'fix' me anymore! its time i try fixing what i can and if it works or not, at least i tried. im tired of sitting on the couch allllll day long (not exaggerating!) just waiting to feel better. this AS is aggressive so its due time for ME to be aggressive.
im curious how u took your enzymes to treat your AS. they say for arthritis and pain u not only take before the meal but also between meals. maybe u did this and it still didnt work, i dont know.
either way i will share my experience, thats all i can do.
sunny
AS & Fibro. NSD + no sugar
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Joined: Jan 2010
Posts: 839
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Jan 2010
Posts: 839 |
Sunny, we are all "fixing urselves". At least in this part of the forum.
The digestive enzymes i use now are to be taken right after a meal. Other types, like bromelain should be taken before the meals with at least 45 min. Depending on the brand/need you will find out inside the pack you they should be used. I've took them as prescribed.
What i've wrote is what i've meant. We just happend now to have different opinions over something, me, based on my personale experience, you, based on the need to find something that works for you. I surely hope it will give you better results than it gave me.
34. Some rheumys say AS stage 1-2 some others say USpA Also UC - rectocolitis. UC curently in remission since feb 2011. AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now... Modified NSD/SCD. Cook your own ! ____________________________________________________________ Mesalazine-Salofalk 500 mg/day And the list of my medication has become verry short after some years on this diet
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Joined: Feb 2010
Posts: 1,046
Iron_AS_Kicker
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Iron_AS_Kicker
Joined: Feb 2010
Posts: 1,046 |
Too bad you people don' speak romanian  Our little chat here would be more articulated and clear at least from my point. I have to say that you do very well, given that English is your second language (third? fourth?) and you aren't living in an English-speaking region. I have always found writing very challenging, cannot imagine being able to do it at all in another language...
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Joined: Jan 2010
Posts: 839
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Jan 2010
Posts: 839 |
Too bad you people don' speak romanian  Our little chat here would be more articulated and clear at least from my point. I have to say that you do very well, given that English is your second language (third? fourth?) and you aren't living in an English-speaking region. I have always found writing very challenging, cannot imagine being able to do it at all in another language... Third, and thank you.
34. Some rheumys say AS stage 1-2 some others say USpA Also UC - rectocolitis. UC curently in remission since feb 2011. AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now... Modified NSD/SCD. Cook your own ! ____________________________________________________________ Mesalazine-Salofalk 500 mg/day And the list of my medication has become verry short after some years on this diet
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Joined: Feb 2008
Posts: 236
Second_Degree_AS_Kicker
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Second_Degree_AS_Kicker
Joined: Feb 2008
Posts: 236 |
Hi Sunny, You can get the probiotic flush. They use water until the last flush and then finish with probiotic. At the time I chose to finish with coffee. It's supposed to help detox the liver - not really sure how it works. That got me jump started, then I did a whole series of coffee enemas. I'll have to try and find the protocol I used if you're interested.
Such fun topics! Only on kickas lol
Annette
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