Kickas.org Forums Treatments, Drugs and Alternatives AS Pharmacy GLOSSARY: DRUGS THAT ARE USED TO TREAT AS

can't really answer your questions but did want to say welcome!

Thank you sue22,
you are welcomed.

My son and I were diagnosed at the same time with AS two years ago. Currently, my son (14 yrs old) is taking 2000 mg of sulfasylazine, an anti-inflammation and a muscle relaxer with no relief. He is undergoing tests to determine whether he is a candidate for TFN blockers. Scary stuff from what I read! I am taking 3000 mg of sufasylazine plus an OTC anti-inflammatory. I have some relief. I have modified my diet removing all starches, not sure if it is making a difference. My question is, what is the normal sulfasylazine daily mg administered?

Hi Diane,

Welcome to KA - too bad about the reason though, huh?!?!

2000 mg of sulfasalazine is the usual dose, but there are many whose rheumatologists will push them up to 3000 mg for a better effect, if 2000 mg seems to be doing 'some good' but not enough.

I'm currently on 2000 mg, but thinking about increasing to 3000 mg soon, if I think I can cope with increased nausea...

Hello,I am new to this neighborhood and this is my first post so...,here goes. in all the above mentioned meds I've not seen anything about pain meds,or maybe I just overlooked it,anyway, heres a question for all, do you suggest taking or not taking pain meds from the Dr.?

Hi Sherry,
There are a lot of us on pain med's. If you know of one, look it up in the "search" at the top. Where I live, you have to go to a pain clinic to get them. I couldn't make it without them. I take Percocet and Opana. If you want to know more send me a Private Message.

Thank you! but see thats one of the reasons I signed up for this board,I am on pain meds but,my dr. really hurts my feelings and its embarassing the way he acts. I just want to not hurt, I tell him this and its always the same reaction,he says,"well thats not gonna happen". Im on injections of humira and steroids and alot of other stuff but my pain meds are a joke. Where I live there is a really bad pill abuse problem so its hard for the people that need them to get them.I feel like crap all the time.I used to be a very active person up until about 2 yrs.ago then its just been downhill since. I was diagnosed about a year ago and I've been through the ringer,I dont know how many different meds I've been on but,its alot. I just dont really know how to explain myself to make the dr.s understand. I'm to the point of giving up, but I have a great support system,my husband, he is the best!Going on 20 yrs. and we still are best friends.Going on and on and on and on sorry!

I am on 3000 mg sulfasalazine and 15 mg prednisone per day. I still have pain usually but with no health insurance - bio's aren't an option for me at this point. I am self employed and unfortunately I don't qualify for state assistance . I was just diagnosed recently so I don't know what my future is going to look like now. I do not want to go on a narcotic for pain because I'm terrified of those damn pills. Everyone I know that gets on them- never gets off unless they die from a weakened heart muscle or went into pulmonary arrest. I don't know what else to do about this disease ? I'm already at the point of just giving up !! I'm not boo-hoo ing, or feeling sorry for myself - I just don't foresee a normal future. Please tell me it gets better.

HI Rebecca,

Starting (and staying with...) the No Starch Diet got me off daily narcotics!

I have the odd one on a weekend night so I can get a fantastic night's sleep but on the whole I can't believe how much pain I had to endure for all those years (despite meds!) until I discovered the Miracle of ditching the starches! How I wish KA was around 30 years ago and I might not have all the spinal damage that I am now lumbered with...

Good for you Louise!! I like when I see someone get better with the nsd, its helped me too.