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Joined: Feb 2010
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Quote:
Do these foods you are sensitive to trigger your AS or just trouble your gut?


It must raise inflammation, because I was feeling stiffer when experimenting with foods that turned out to be on the food sensitivity list (e.g. the lactose-free swiss cheese I had gotten hold of)

Quote:
How do you take this food sensitivity test?


You can order a test kit that can be done at home (stab yourself with a little lancet for a blood smear) and mailed back to the lab
http://www.vrp.com/ProductPage.aspx?ProdID=9840

or else go to a doctor to get a normal blood test done for the NeuroScience test I linked earlier

tuxa #412291 09/13/10 12:12 PM
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Having had very similar symptoms to you, assuming you have already cut out sugar, I found the problem to be the sugar in fruit. Given time, the Kleb bacteria seem able to evolve to use this as their food source instead of starch (alternatively it can be Candida which you are reacting to). Try cutting out fruit altogether for a week or more.

As recommended, by others, Oregano oil (the best) and coconut oil are great anti-bacterials.

You also might find some useful info on healing the gut if you Google 'Healing naturally by Bee', I used it to influence my NSD to great effect (I did not follow her diet to the letter as it is quite extreme). It will also help control weight loss, due to the large amounts of oil/ fats eaten.

I wouldn't recommend going LSD until everything is working well on the NSD. I find it's entirely possible to get away with one starchy meal (rarely), if the number of Kleb's in your system are very low, they are (IMHO) not able to reproduce quickly enough to make use of the starch as it passes through, the problem occurs, when you have a little starch a little too often. I find it takes 24 hours (depending on the speed of your transit time) for the symptoms of a starch meal to show.
It takes time to adjust the diet to what best suits you, 7 years into my NS/ LS diet I am increasingly able to tolerate starch, but still not much fruit or suagar.

For some stodge that you stomach is craving, try coconut flour bread and lots of butter, and if sugar is not a problem for you, then all almond flour cakes are lovely.

Just my 2pence worth, hope it might help.
Best of luck.
Stuart.

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Hi FlasHarry.
Good to see that you had good results with NSD. I hope i will be able to tell the same after a couple of years.

I have same problems with sugar and fruits. I am able to tolerate white grapes though.
I've read on some blog - http://coolinginflammation.blogspot.com/ - that fructose has an inflamatory effect over our gut. Probably those who are already affected by a cronic inflamatory disease overreact to it, like us.
The advice i've read on that blog is to search for fruits with lower fructose content - white/green grapes or other similar.

First time i;ve tried NSD - 5 months at the begining of this year - i used honey in excess (with coconut bread&butter). Now i gave up honey&coconut flour, and things seem on the right track.
Maybe it can help you.

Last edited by Alinus; 09/13/10 01:34 PM.

34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
Alinus #412310 09/13/10 05:04 PM
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I believe fructose has an inflammitory affect on me. But I have found that with an overall lowering of starch sugar, lactose, fructose etc, fructose is more tolerable in small doses

I am currently following the same program Stuart mentioned www.healingnaturallybybee.com. This is helpig me heal my gut problems and it is very easily adapted to the NSD because many of the principles are the same

Love joanne

Last edited by joannesford; 09/13/10 05:32 PM.

My name is Joanne and I am about to go for tests for AS. Any advice would be much appreciated
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I have my doubts about Bee's medical knowledge. I've registered her yahoo group and received some infomational e-mails that got me thinking... Her arguments are somethimes nothing but cheap sophisms.
Also, an extreme diet on a medium/long term seem verry impropper to me.

Just my two cents.


34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
Alinus #412360 09/13/10 09:39 PM
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At least you consider it Alinus, which I admire. I can tell you it works for me with my Candida and Fibro, I cannot yet say how good it could be for AS because as you know I am not yet diagnosed

I am back at the hospital tomorrow. I believe I will know either way with the AS within 3 month because if I continue to have problmes with the NHS I am going to pay for the tests myself

If I do have AS, I intend to learn all I can about ALL the medication available, I am not against conventional medication per sa. I am a realist I know folk need convetional medication, there has been many times when I could not have coped with my illness without it. But I am terrible with side effects of chemical medication, so much so that it can make me very unbalanced in my thinking and I really cannot stand that

I do have some other therapists that I also 'take what i like and leave the rest', if you ever want to know about any of them send me a PM and I will PM it back to you. I only ever recommend folk where the core treatmet is free, and where it is worthwhile looking at because it is free. I have only ever dealt with free advice. I have no money to pay for advice, but I can occasionally stretch to buying supplements, but even these really do have to be cost effective

Anyway, at least you could be bothered to look. Right now my PM boxes are bursting with other folk asking me stuff. I don't mind giving this stuff away. What good is it to me just to keep it to myself? But I really do hope nobody feels like I am pushing it on anybody. This really is not my intention, I am just happy to share it with anybody that wants it

Love Joanne

Last edited by joannesford; 09/13/10 09:41 PM.

My name is Joanne and I am about to go for tests for AS. Any advice would be much appreciated
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Hi Joanne - Who diagnosed you with candida and how?


34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
Alinus #412433 09/14/10 08:39 AM
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It was my GP. For months I had the stmptoms of Candida, fatigue, bloating, stomach cramps, irritability, intching below and so on and I kept going back and she kept giving me Diflucan a toxic medication when used long term

One day I asked her if she could do a smear and find out for certain if this was Candida, and immediately she new it had turned to Candidiatis.

If you have ever seen a babies bottom when they have Candida, well that what my bum looked like LOL

Anyway she took the sample anyway, and a blood test and both test showed I had a severly high level of Candida.

Now the diflucan did work and she told me I could take high doses of this along with Nystatin to see it off. But when I read up on it I found that in vunerable people the Candida can actually become immune to the medication. I asked around on the Internet and this lady told me her daughter had resistant Candidiatis and that she was loosing her marbles with it big time

I went on Bees board, not Bees site, she has a board where folk chat, a bit like we do here, about their symptoms and so on

Two ladies there both had children with Candida and their children had developed Autism because of it. I sat back and watched for weeks whilst these to women came on the board each night discussing their childrens nightmares

They were sating how their children screamed all night, banged their heads against the wall, refused food, were years behind in development and so on. But only a few weeks into the program both women started to report miraculous chnages in their childrens health

One womans child was further on thatn the other womans child and she was basically guiding the other woman through the program.

Each time her child had a reaction from trying to get well with this the other woman new this was not a Candida symptom be a symptom from healing and reasured the other woman that these things were signs that the child was getting well

I wento onto the program and I foud I started to get headaches and nausea and tingle in my legs and lots of other strange stuff happening but hbecause I had heard the woman speaking to the other woman about healing reactions I saw this through and only a few week later my rash on my bottom had clear, so had the itching and bloatedness etc

I felt really good and a few months later I decided I could reintroduce some of the foods i had been holding back on

Well I was wrong the Candida returned and it was just as bad if not worse than thef first time

So I returned to Bees board and started over. I have remained on the restricted sugar regime right up to this day

Anyway, regarding tests, Dr mercola explains some of that here

http://search.mercola.com/Results.aspx?q=candida&k=candida

Love Joanne

Last edited by joannesford; 09/14/10 12:51 PM.

My name is Joanne and I am about to go for tests for AS. Any advice would be much appreciated
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I've asked because there's a lot of people here who seem to selfdiagnose themselves with candidasis.

I know the symptoms, i've had verry bad eppissodes with candida as well.


34. Some rheumys say AS stage 1-2 some others say USpA
Also UC - rectocolitis.

UC curently in remission since feb 2011.
AS/USpA remission march-aug 2011. Flare - sept-nov 2011 (antibiotics). Remission now...

Modified NSD/SCD. Cook your own !
____________________________________________________________
Mesalazine-Salofalk 500 mg/day

And the list of my medication has become verry short after some years on this diet smile
Alinus #412442 09/14/10 01:30 PM
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I have read many theories on the candida, my conclusion is that Candida is probably the bodies own antibiotic. It is fungal just like an antibiotic. As you know our modern diet full of sugar, starch, chemicals, metals, hormones and antibotics can very easily upset the balance of gut flora. In the past when folk ate just natural food and not this diet we have here in the west now, I mean I do know each society had its own diet, but the balance of the diets were all pretty similar, mainly meat fish poultry eggs, vegetables and fruit and only small amounts of bread cereal and definately small amouts of sugar, the gut bacteria clearly had an heirachy of its own

That is the bacteria needed to digest the core foods meat eggs, fish and so on I would imagine would have been in large numbers, abd the bacteria for sugar fruit, lactose and starch in smaller numbers when these items were only occasionally eaten

Before my candida and other health problems I was seriously addicted to starch foods like bread cake and biscuits. I craved them and only felt OK when I had them. I would shake if I could not get them. It was the same with the others sugar, lactose and fructose but just not quit so bad

I never understood why I wanted these foods so badly but I did know that a hour to 2 hours after eating them my IBs was triggered and later on I started up with Candida

Now this is all my own ideas I am not tryig to promote it as fact, but my diet was at that time mainly starch, and sugar. At that time I barely ate fat at all, except the fat i the buscuits and cake and I ate only a small amount of protein, prefering Pizza instead. Looking back I can see my diet was very bad but at the time the doctor and the weight watchers i was attending was seriously promoting low fat and claiming these foods were good for me

Anyway as you know to digest starch and even the other food it is not the bacteria that helps with digestion of meat fish eggs etc that my gut would have been full of it clearly would have been the bacteria to digest thiese things

some bacteria to digest these foods will I am certain be harmless, but the pathogens like Klebsiella salmonella and so on they love this kind of food so in an environment where their is ample lunch, it would not be suprising if these bugs would set up home here

in fact it is likely my body actually was pleased to have them and I think it protcted them whe they were in the gut, something had to digest all that starch sugar etc. But when they escape and I am not simply talking about klebsiella here, because i know you already know all about that, but if there are others and they get out or even spread to another part of the gut where they should be it makes sense to me that my body might create a fungus like Candida that like an antibiotic could control their numbers

Anyway, if you have had bad canida you will already know that cutting back on sugar starch fructose and lactose decreases candida. With an anti candida diet you do actually end up eating the more natural diet of our ancestors, meat fish eggs, vegetables and so on. If we do it long enough and vigourously enough not only does the candida clear up but the IBS does to and the bowel begis to work more correctly. It is my feeling that without all that munchy starch and sugar and lactose fructose and wjhat ever the now less importat bacteria either deminish in numbers or hibinate. And the normal bacteria, that humans used to have before this strange modern diet, grow in number, repopulate the gut and this is why other people on these anticandida diets do not just report less candida, better IBS but other bowel and stomach improvements such as less ulcers. I just thank the Lord I have never had them

the other thing, and this is the thing that brings tears to my eyes is when i see folk that have very severe candida and gut problems and it has begun to affect theri nervous system and they have stuff like autism, or severe nervousness, foogy head, Fibro etc and I see them change their diet just to a natural food diet like I have just been discussing and after just a few eeks their faculties return. I still cry now. I cant help it, I knwo it is sentimental but physical illness and pain is as you know pergatory, but to loose ones mind is hell

I may have mentioned my family are all seriously ill and have all changed over to the Paleo way of eating. Well there is only me that is very strict with it. My dad has whey drinks, cocoa, ryvetta, and stuff like that. Personally i do think he would do a little better without them, but even with these, because he limits his intake and eats mainly the paleo foods he is doing incredibly well. and I mean incredibly well. some of his symptoms have goe into reverse and the progression of his illness is very slow. It is the same with my husband, be follows the paleo thing well, mainly because i do the cooking, but he will have oat biscuits and bananas, and a few other things now and then. None the less for somebody that has had two bria heamohages (the one he went into hospital with and the oe on the operating table) he is doing magnificently well too. My sister, she has schitzophrenia that was brought on by unstable blood sugars, has managed to reduce her insulin and now she eats mainly natural foods is doing really well, and my children are very healthy too. I have friends with fibro candida etc that I have met through my study of all this alternative stuff, who have all improved by reducing processed stuff and changing to only herbs, nuts seeds vegetables and a few fruits as their main carbs

It is never easy,t his lark and we all have that one or two things that we know are not helping but we cling to, mine was bread and chocolate, but if we just stop seeking out the 'christmas dinner' feeling these things give us, and instead start believing I want that light athletic feeling, I want zest for life, the mind changes over time, and as you have probably heard me say a few times on here instead of saying, 'I miss sugar I miss starch, I miss lactose etc, I say I hate them, and my mind does believe I love them and when folk try to serve them to me I now get a nauseating feeling LOL

Anyway, I know one thing nobody could tell me. And when folk tried to tell me it was like they were putting coals on my back, so this why I even understand that somebody who is suffering really bad with candida or anything else that could be helped with this, might say forget it. And this is why I don't push it. I just pass the info on, those that are interested come back and ask if they want to know more. them that dont have as much right as I have to eat anything they want to. In fact only 5 weeks ago I still ate Ryvetta cocoa and other stuff so how can I lecture anybody. I did not know 5 weeks ago these foods are probably enormously bad for me, we learn as we go along that is all any of us can do

Thanks for listening Alinus. I dont know if any of this is any use to you, but maybe somebody else on here might of picked up something so it is worth a share really. Plus it helps me clarify in my own mind why i do what I do

My appreciation as always

Love Joanne


My name is Joanne and I am about to go for tests for AS. Any advice would be much appreciated
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