Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group FASTING

Whatever problem you have with John is between y'all.

Just because I stated my opinion that we should ALL have to put a disclaimer on any potentially dangerous treatment,if he should for fasting, doesn't mean I should be called as a "disciple".I hate labels.
I am so sick of any opinion I have being repeatedly attacked and being called names,I'm sick of coming here!

bleeker,

i've only been here for about 2 years, but as you can see, i'm here a lot, post a lot, and also have a habit of going back and reading old stuff as well, so here are my impressions: the NSD debate has been on going for quite awhile, and i think will continue to do so. some are on one side of the debate, some on the other, some are somewhere in the middle. sometimes it flares up a bit more than other times, but then settles down again. most of the time everyone is civil here and polite and kind to one another, but sometimes i think passions flare a bit and we just all need a reminder to treat one another with respect. think we can agree to disagree, respectfully. think we've done that pretty well thus far, and am optimistically hopeful that that will continue to be the case.

Bea Arthur Itis

Love the name!!! very creative.

I really wasn't refering to you pointing out the disclaimer, you were just conveying information by pointing out it was there. My issue is more with the tone of John's posts (nothing new). More infuriating is having a moderator STEP IN and start telling everyone what John meant in a condescending way.


I guess the role of the moderator is to be Dragonslayer's Press Secretary.

Well, my issue is the nature of the site. Is it a "neutral" site?
Who owns this site?

Can we put other papers over in the side bar, other information than the diet stuff. Not saying take the diet stuff down - but there are many informative clinical papers published over the last 30 years. They should be up there, too, shouldn't they?

And so should things like the stretches sheets.

Who decides that stuff?

As a matter of fact, there has been a discussion in other threads about that exact point. I believe it is up to each moderators discretion and John happens to be particularly motivated in his personal point of view which is the only reason it may appear like a Dr. Ebringer fan site.

The truth of the matter is that there are people who are tired of being beaten over the head with the NSD diet and insulted when they disagree. Some, like myself, tend to give it right back.

I know that Wendy has been adding studies and papers relating to RA as well. She could certainly help you expand our completely neutral, open-minded library of online papers. I also know that I, for one, would be extremely grateful to see whatever contributions you might have for such a list.

As for who owns this site and it's purpose goes - I asked that exact question and one of the moderators explained to me that John certainly did not start this site, it does not belong to him at all and he does not speak for all of us...or even remotely close to most of us. The problem is that anyone who voices dissent is jumped on by a small group of very opinionated folks.

There is also a fairly large group of reasonable people who also find that this particular diet, or variations of it, have worked for them and they are eager to share their views from a position of compassion - unfortunately, they get caught in the crossfire due to the limitations of cyber-space...well, and my own crappy writing too I suppose.

Most of the people here are truly compassionate and kind souls who have gathered at this oasis in an open-minded and neutral community. As I have said before, there is truly nothing else like it anywhere on the web from what I've ever seen. I consider this place unique and special, not to mention beautiful.

It would not be fair to some of the most beautiful people I have ever "met" to judge this site by any of this garbage...especially my own posts.

I am saddened by this whole issue. This site is in jeopardy of becoming Dragonslayer's personal sounding board where he is never questioned. What I don't understand is why so few people are willing to speak up about it?

Chris

Rather than disrupt the forums, anyone who has *issues* with how KickAS appears, is operated, managed, maintained, moderated, or funded - I welcome you to write to the Admin team in private to discuss whatever constructive suggestions or complaints you may have to offer.

Kiwi is a great Moderator, doing an often thankless job and volunteering her time in YEARS to helping others. Everyone on the team works very very hard at maintaining a place for EVERYONE here, regardless of treatment paths.

As Chief Admin, I do not practice the diet and have not even tried it, if that helps to answer anything about the nature of KickAS. It is pretty easy to throw stones but how does this help support your fellow spondylitics?

I would remind and thank everyone to be please be respectful of one another's opinions.
mig

i for one would love to see as large a variety of scientific papers on here as possible. if you have papers to share and could get admin to help you post them here, i'd be ever appreciative to you and they both

i think the more information we have, the better

I love all you guys, you have made a great difference in my life. You too John! Kiwi seems just fine to me.

I'm serious about the sidebar mig. And the ownership, is it a non-profit group? Or what?

I was involved in an encyclopedia website and such things were discussed openly. Maybe the history of the site is posted somewhere and I'm missing it? Or maybe there is a different philosophy?

Is there an editor who sets up the site skin and content? The admins?

That is an excellent point Mig.

It is also the entire point. People who may not agree with John and his personal views might get a little tired with being overwhelmed by it all. When the moderators circle their wagons to defend him, it gives the appearance that KickAS shares those views.

I would ask why this post isn't moved to the diet forum, where it belongs. Please have a talk with John and ask him to tone it down. Perhaps stepping in to moderate everyone's insulting posts would give the impression that we aren't members of his personal webpage. I imagine the NSD forum was created to deal with this problem in the first place - part of being open-minded and welcoming of others view points is to respect the fact that some may not agree.

Maybe I'm a terrible person and John truly is a wise man walking amongst us mortals, I guess I'll find that out eventually. I find this whole thing disgusting and quite possibly illegal. People should be protected from individuals dispensing potentially dangerous "medical" advice, especially when they have no credibility or background in medicine.

Everyone's opinion is valid whether they agree with the NSD or not. No one deserves to be ridiculed or insulted by moderators for speaking up about this.

Chris

Mig

I was not questioning Kiwi's credability, I was questioning the motivation to have to step in and explain what John was saying. It is too bad in doing so it appeared more defensive than informative. I do not care for a "Sales job". I know I have interjected myself into this but I could not stand by and watch what I perceive to be as someone being bullied.


If I was just coming here for the first time and read these posts I would point my cursor to the little red X in the corner. Never to return.

............and the shame of it all would be that they would never get to meet some truly wonderful people here.


How sad.