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Oct 6th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Mar 2010
Posts: 132
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Mar 2010
Posts: 132 |
Hi everyone I wanted to tell you my story, but then I feel like a big whinger. So I will cut it short and just say I have AS too, been on a heap of drugs which didn't work. Then tried humira and am now on remicade tramadol and sometimes oxycodone. I'm 49 was diagnosed last August after years of justifying to myself why I felt so awful. Its nice to be here amongst people who understand! I'm looking forward to talking with all of you. 
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Joined: Dec 2008
Posts: 5,231
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Joined: Dec 2008
Posts: 5,231 |
Welcome to KA, Tulip. Sorry that you have AS but I'm glad you found us.
Wendy
Rheumatoid Arthritis
Methotrexate, Celebrex, Plaquenil
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Joined: Feb 2010
Posts: 1,524
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Feb 2010
Posts: 1,524 |
Hello Tulip Welcome! Glad you found your "voice" on here! I for one, would be very interested to hear more of your story if you want to tell it. It might help to give details so others can relate specifically to your problems and experiences... just a thought. Hope to talk to you more, take care 
KickAS and help others do the same!
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Joined: Jan 2004
Posts: 9,848 Likes: 6
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2004
Posts: 9,848 Likes: 6 |
Hello Tulip - Welcome to the KA family. Join Tink in saying that hope you'll tell us your story. AS is such a weird disease that all info is grist to the mill.
Look forward to hearing more from you - and don't forget, any questions, just ask away. There is sure to be someone who has some sort of info to clarify matters for you, and if not, then can at least be supportive, and, send you a big (((HUG))).
Have a happy day -
Molly C (France)
Keeping on Keeping on (as one does!)
MollyC1i - Riding OutAS
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Joined: Jan 2009
Posts: 313
Fourth_Degree_AS_Kicker
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Fourth_Degree_AS_Kicker
Joined: Jan 2009
Posts: 313 |
Ditto on telling your story. AS differs in everyone, and I think all together, we each have the keys to understanding this disease. I feel like we're a big think tank, and it's good for us to keep believing that we'll find the cure some day.
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Joined: Jan 2006
Posts: 3,016
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Jan 2006
Posts: 3,016 |
Hi Tulip, welcome to Kickas. I'm always glad when another AS'er finds their way here. Just making that first post sometimes is the hardest thing to do. I will have to agree we do want to hear you story, that's how we get to know you and your situations so we can help. You will quickly see how this is place you will feel comfortable in. This is one big family, and the ideas and information will help you a lot.
Cindy
" That which does not kill me only makes me stronger"
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Joined: Apr 2009
Posts: 1,576
Gold_AS_Kicker
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Gold_AS_Kicker
Joined: Apr 2009
Posts: 1,576 |
Lay it on us! It helps me feel like I'm not probably, maybe, actually losing my mind when I hear others AS symptoms!  -D
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Joined: Mar 2002
Posts: 9,552 Likes: 10
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Joined: Mar 2002
Posts: 9,552 Likes: 10 |
Hi there Tulip,
Glad you could find us here, great site for support and learning about AS. Pray you can find what you are looking for with stopping by at Kickas.
Tim
AS may win some battles, but I will win the war.
KONK - Keep ON Kicking
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Joined: Feb 2010
Posts: 2,190
Major_AS_Kicker
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Major_AS_Kicker
Joined: Feb 2010
Posts: 2,190 |
You have heard of the Book of the Month Club? well this is the joint of the week club. Funny, I don't remember signing up. This is a great place for us newbies.
Donna
Donna
Cherish your yesterdays,
Dream your tomorrows,
But live your todays.
Do the very best you can
leave the rest to God.
God Bless,
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
hi tulip and welcome!
i too would love to hear your story.
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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