Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group I am new to this site and to AS, and Im not coping

Thanks heaps will check it out tried to early but couldn't find it.
My head not realy with it.

I just posted the contact information for you to find a specialist closest to you. Uveitis is very rare, if you can advocate for yourself and let your doctor know that uveitis/iritis can lead to blindness and far too many people don't get treated quickly enough, appropriately, aggressively enough. The inflammation has to be fought.
Jan

Alan wears a bracelet as well.. but his doesn't say "Kevin is great..."

LOL, Hubby keeps telling me he always thought I should wear a dog collar. Very supportive not. LOL

Hi Aussiegirl,
Wow... you have about the same history as me...
I have swollen my knees. I also have a lot of problems with my hips and my left and some time the right hip dislocates.
THIS HAPPENS ALL THE TIME... IT IS SOOO PAINFULL!!!
I HAVE MISCARRIED 2 SETS OF TWINS AND ONE STILL BORN and have 2 children
Have inflamation of the pelvis. Had to have my appendix removed along with a hysterectomy.
I have been on meds and anitbiotics for years
I have IBS, reflux and other stomach problems from the medications.

I am now off the reflux meds (am making kifer from raw Jersey Milk)This is a lot of work, but so far it is worth not having to take the stomach meds.

I have low blood pressure except when I have broken bones.
One bout of Irisitis
Broke Back, pain in my lower back, mid to upper back, left shoulder,(Bursitis) neck,(Mine froze up) knees and legs.
Got the diagnosis months ago confirmed the diagnosis of AS.
I know what you are going though. I have had some luck with the Low Starch Diet,, but I keep falling off the wagon...
Never was good at Dieting. My Doc Gave me Indomethacin ER 75.
Gives me relief... but take sparingly, as I don't want to mess my stomach up again.
I am trying to heal my gut. I am 59... I am lucky this did not start earlier in life.
I notice when I went on a 7 day fast all my pain went away except for being very hungry. So I figured there must be something to the Starch connection.

Wow kbeadle, our experiences are so much alike.
Thank you for posting that.
I am not in a very good state again today, the pain is getting unbareable and the oxycodone is only affecting my head and no help with the pain.
I am realy lost right now but hearing your experience helps me not feel so overloaded.
Thanks heaps.
xxx

Hi there, I've had anterior uveitis (iritis) as well and cannot underscore strongly enough what the others have said. AS and eye problems must be taken extremely seriously. The doctor in your ER sounds like a total git. I don't know what the rules are in Australia, but here, if we request a referral to a specialist, it must be given us. I would print off all the information you can find, including discussions here, and take them to your GP to push the issue. You may not have iritis, but the dangers are too great for your doctors to ignore this.

Hugs,

Thanks for that. Thats a good idea. Will print some of the stuff from here.
I get my medic allert necklace today, maybe that will help me with them taking me more seriously.

Thats if I can get to the chemist. Bad day today, realy bad.
Thank god for everyone here.

The MERSI site has a lot of good info on it too - I also went the printout route a few years back when I was looking for a referral to a specific ophthalmologist! It seemed to help.

I'm sorry you're having such a bad day!!!

I'm sorry you were feeling so lousy yesterday.

Hugs,