Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Professor Alan Ebringer question

Can anyone tell me if Prof Ebringer's claims of starch free diet is in any medical journals?
i went to a GP today and he was very quick to dismiss Prof Ebringers theory simply because its lack of being in any Australian medical journals. Interestingly enough when i asked the doctor "if he was me would he follow the starch free diet"? to which he said YES.

I think if nothing else it at least makes you feel better overall. Proof or not i think it is a good idea to at least try and see if it helps. We don`t need a doctors opinion for what makes us feel good or bad. We can tell

i am going to try it for 12 months and if i experience ANY improvement in my pain levels - its for life. im still taking sulpur, brufen, painkills to help me get to sleep. even if it only gets me off the pain kills its a winner!!!

It may sound bad but i am actually looking forward to the pain meds everyone keeps talking about. So far my doc has only put me on Anti-inflams and Tramadol(worthless). So my pain levels are pretty high. I have dealt with the pain for almost 30 years so for the most part i am used to it but with these new issues i am getting bogged down and my energy levels are crap...i tried percocets when i had cancer and i am hoping to get back on them for at least the peak pain intervals. I wish i could stick to the LSD/NSD diet but it is expensive to eat healthy and i have alot of mouths to feed. I usually have to eat what they are eating.

Hi, Darryn:

Ebringer has published over 100 peer-reviewed papers in nearly all of the professional journals, especially BMJ, Journal of Rheumatology, Clinical and Developmental Immunology, Lancet, Rheumatology International, but I could not find any Australian journals which is odd, since he is Australian, just like Marshall and Warren (and also found a germ-cause of disease where previously doctors believed there was only "stress" as a causative agent).

He usually does not publish in the slick magazines that most physicians "think" are their journals--these are chimera, published by pharmaceutical corporations, and many have similar-sounding names to the legitimate journals they misrepresent. Doctors think they are keeping up with their discipline for free, but they are just being propagandized.

I don't know whether Ebringer has even submitted any papers to any Australian Journals, but I'll suggest it to him. He was there when I received his last email and complaining about a noted rheumatologist treating our fellow ASers who just said essentially giving his patients drugs is easier than encouraging diet (with his own observation that people on NSD/LSD seem to be malnourished; he's never seen ME!!).

Glad YOUR doctor has good sense.

Click on the Diet Centre "Technical Papers" offering and You can find some of Ebringer's published works. We will be submitting many more in the near future.

HEALTH,
John

Hi Darryn,
One of the best features of the NSD if it works for the patient, and I hope it works for you, is that the patient is able to claw back some sort of control over his disease. One of the hallmarks of chronic diseases, and AS is no exception, is that the patient is depressed, he feels the situation is hopeless, and that he is reliant on his rheumatolgist to sanction some life giving drugs to save him, or at least lessen his pain.
The suggestion that your GP would dismiss Prof. Ebringer simply because he hasn't been published in an Australian Journal is laughable. I doubt there are any Australian journals with a high international profile of any note. Perhaps the good Professor was wise to avoid them. That sort of comment is typical of conservative and ignorant medicos who fear that sanctioning any treatment modality that has not yet gained wide acceptance leaves them open to litigation.

Cheers David - and good luck!

Not to mention no free lunches, stethoscopes, expensive dinner sand sponsored ski trips, ALL courtesy of the big pharmaceutical companies, who prostitute themselves to the GPs in order to make their profits!!!

Louise (another dreadful cynic...)

thankyou for this information, i always thought the health system here in Australia was crap - ive got a veterans affairs gold card that proves not everything that glitters is gold. eg..i could roll a poo in golden glitter - it looks nice but its really crap. I should have listened to my mother-in-law in Manila when i was there and seen the local filipino native witch doctor. they melt a clump of wax and then throw it in a bucket of cold water. witch doctor then looks at the wax and come up with cause and cure. My mother-inlaw was feeling ill, the witch doctor found a wax dwarf with a large watermelon skin stuck ontop of his head .
she had been cursed by the angry dwarf that got hit on the head by a watermelon skin she threw at the tree and only cure was offering the dwarf free fruits by placing fruit near the base of the tree (living under the tree at front of there home).once she done that she was fine....

"i could roll a poo in golden glitter - it looks nice but its really crap"

Awsome!!...I think i`m going to like you.

Hey, Darryn:

My wife has a similar story about those Philippine dwarves; her mother had to make an offering to propitiate for accidentally scalding the child of a mound-dweller; it was my wife then a small child with inexplicable, untreatable "burns" that went away only after apology and payment was accepted.

When I went to the albularyo (egg diviner--cracked egg into a glass of water), she told me to drink a terrible herbal potion to straighten out my neck. Nobody else could stand the stuff, but about all it "straightened" was only maybe the patch of dark and curlies.

The price was right (Ps 0), but if life were at all fair, the medical establishment here in US would be paying me big bucks for all the damage they caused (and/or I was dumb enough to follow their directions). It is not just Australia, but everywhere those of us with AS can almost never get even reasonable "care" from the medical guilds.

HEALTH,
John