Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Thinking of cutting my legs off.... RLS whine

Well hun, I am not sure what else can help..I love my requip and my neurontin...um, the only thing I can think of is up your iron, magnesium, and um...I cant remember what else...taking hot baths helps me too.. I had a bad night last night and just soaking in a hot bath helps calm it a little...just don't fall asleep(it happens..lol) I wish I could help you because I truly know how you feel (I have rls on my entire body).. Hugs and wishes for some relief...

No advice, just *hugs* and chocolate.

Megan where is the pain at in your leg? I ask because my rheumy has said he thinks my problems is in the sciatic nerve. I will have pain that goes down the back of my leg sometimes all the way to my toes and it varies from just tingleing numb feeling to all out pain. It doesn't happen very often but if I am in a car and sitting too long at a stretch it will start up and once its going it takes a while for it to go away. My lower back/ SI always hurt it doesnt come and go like the rest of my pain and my doc thinks that because its always hurting and infammed it is pressing on those nerves that run down the lower back and legs. I havent found anything that helps yet. I hope it goes away because I know that pain just drives my insane...

Angie

Megan, I don't have any advice, but I just wanted to let you know your in my thoughts and prayers... Praying tonight you get the sleep you need. I know how hard it is when you can't sleep. I went through it last week. Wednesday I got 4 hrs, Thursday I got 3 hrs and Friday night I was up the entire night! It really wears on you.

Kim

I wish I could help you with the legs...... all I have is calming leg thoughts that I'm sending your way and
I hope your docs can get to the bottom of it.

Megan,
My advise is as odd as your post.
I did ask about cutting the nerves years ago. I guess that canmake htings worse, phantom pains.... I think wether walking, sleeping or jsut sitting, restless legs require, aobut a pound of choc. a good hot bath, I often use the nearest plugin, wiht aobut 4 foot of wire. the zing generally does not kill me, if it does kill me the initial shock seems totmake the restless thing less noticable.
There are times, that I hold my breath until the rrestless legs become less a problem.
Then thjee is the talk to the leg thing that neither works or helps, but I seem to be in a rut, so I continue talking to them. I prefer my right leg, it has more hair and seems to have some bulges that are not muscle..
Any way, Meg, I put both legs in a vise, and then my body flopped around like I was having a good fit.
Let me knw how you solve it.

hi megan,

no advice, just ,

sue

errrr, Have you ever thought about cutting your legs off.....!


Ok so not funny.......wish for once I could say something sensible. but oooooooh is so difficult.

You'll get better. Grit teeth smile and have a glass of wine.

Hi Sweetheart!

We can talk later tonight if you feel like it...

I know and I'm so sorry that you can't seem to find something to help we just need to keep looking.

I know it is hard but you have so much to look forward to, just try and think about all the positive things that are going to happen in the next months.

You are precious, you are stronger than you know, and you are SUCH a great friend to me and many others..keep your chin up!

Hugs,

Lisa

Hi Megan I know its hard being in pain all the time but you will get through it. Keep strong.
Kevin