Kickas.org Forums Treatments, Drugs and Alternatives AS Pharmacy LDN Started last night!

Sue - LDN has never interfered with my sleep patterns. Pain has, like chest pain or back pain. But that was mostly when I had run out, or, my LDN had been elsewhere in the house and was too lazy to go get it...ho-hum! (^LOL^) So, in effect, my fault.

Swear by the stuff - could have wished for a 'few' dreams, but nary a dream. Oh well. 'Smile'.

Molly C (France)

Heigh you guys - the e-Book is out, part one available here http://www.ldnresearchtrustfiles.co.uk/docs/International%20LDN%20Awareness%20Week%20eBook.pdf
and part 2 in the offing. Only saw two names re AS... Please add YOUR story to the e-Book: Donette, CC, jaybird et al. We need more ASers, that is not just the preponderence of MSers. So come on, contributions, please. My LDN Story to: contact@ldnresearchtrust.org

Thanks fellas -

Molly C (France)

thanks molly,

yeh, i think it was pain waking me up. because the last few nights as the pain is decreasing, the number of hours of uninterrupted sleep has climbed to about 5, that's an improvement.

and think that's due to the PT ultrasound of the trigger points.

joint pain seems to be about the same, but that doesn't keep me awake at the level its at.

at 1.5 mg, not sure i've seen much of anything, good or bad, but taking it slowly. after years and years can wait a few weeks or months if need be. will slowly increase when sure about the 1.5 mg.

Hi Molly C,
Thank you for the LDN reference.

JAY

been taking the 1.5 mg of LDN for almost 2 weeks now (12 nights).
so far, haven't noticed anything, good or bad.
no obvious side effects. no improvements.

but for most of you, it did take a while to kick in, didn't it?
and only once you built up to the higher doses, right?

will try to remain patient. but not working and barely sleeping for almost a month now, well, you know.

1.5mg is still a very low dose Sue, so probably won't be seeing much of an improvement yet. Prob about time you started to up the dose. May I suggest you now go to 2mg or even 2.25. Stay on that for about another four weeks and then up again. You will be aiming to get to 4.5 - 4.75 over a time period of say 2/3 months.

You might not have any side effects, at all. I didn't, not even one dream! Very boring...haha.

thanks molly.

i have 90 1.5 mg pills, so will increase from 1.5 mg to 3 mg, was debating on doing so either at the 2 week mark which is tomorrow or the one month mark. thinking since i'm not feeling anything may do it tomorrow.

what is the risk of upping it too fast?

I was told that it was a choice to build up to it... that I could do it that way if I was afraid of vivid dreams or insomnia... remember, chronic drinkers, gamblers, smokers and cutters are prescribed 300 mg.... (have you searched naltrexone over at Science Daily? I just like the search engine there best)...

Anyway, I just dropped back from 6 to 4mg... based on nothing intelligent, just a feeling. I feel better. Not tons, not a cure, but better ... sort of like it's a super multi vitamin... why would I stop? If at the end of a 12 month trial I decide I need to go back on my other meds (based on inflammation levels) I'll probably stick with the ldn also... and indefinitely.

Hey Molly,

I sent in my ldn story today!! Thanks for reminding me. We definitely need more AS representation in that booklet!!

-Donette

thanks CC, well, no vivid dreams or insomnia on 1.5 mg for 2 weeks, and was so impatient to get on with it, upped it to 3 mg on saturday night and still nothing noticeable, good or bad. but i know the "good" can take months, so am being patient, sort of. can't wait for the "super vitamin" effects to kick in. thanks for the info on why to build up slowly (or not), i really had no idea as to the reason.

will go search where you suggested.