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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
HI Cindy...wow, you went through soooo much to get the meds!! Hang in there girl.
Betty
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
Thanks Sue...Hope you are doing well.
I'm ready for some "new" meds. After 2 years, the Vioxx is not cuting it.
Betty
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
Yes Krystyn,
they told me that I would get the "real" drug when the test is over. They could not promise how long the med would be free. However, If it works.....the insurance company may not deny at a later date.
Betty
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
thanks Jackie...hope you are doing well.
Betty
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
Hi Laura, I do not know how bad it has to be. But there are so many rating scales that have to be completed, that I am sure they look at it very closely. My AS is fair ...maybe moderate. It is getting worse by the day. The enbrel is none too soon.
Betty
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
Hi Mark, Nice to hear from you. I appear to be getting worse but with the Enbrel study, life is looking good.
Betty
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Joined: Sep 2001
Posts: 2,609
General_AS_Kicker
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General_AS_Kicker
Joined: Sep 2001
Posts: 2,609 |
Laura, Someone will surely correct me, if I'm wrong. But even for RA, they try NSAID's, then DMARD's. Enbrel or Remicade is usually prescibed only after you've exhausted all other options. Hugs, Cindy 
Hugs,
Cindy
Back pain since early childhood. Dx'd with HLB27 iritis in '96, AS in 2001, FMS in 2002.
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Joined: Sep 2001
Posts: 37
Member
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Member
Joined: Sep 2001
Posts: 37 |
Thats a pity - last I remember you were feeling pretty good ... Hope the enbrel helps.
cheers
Mark
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
Thanks Mark....Some days are better than others. Depending on how I feel...each email may sound differently. lol
Betty
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Joined: Sep 2001
Posts: 1,432
Silver_AS_Kicker
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OP
Silver_AS_Kicker
Joined: Sep 2001
Posts: 1,432 |
I will return Monday for the missed x rays. The guy coordinating this stuff said that if I did not come back ASAP that they would not be able to send the info to the Enbrel people. (The Enbrel people have to respond and you have to get the meds within 14 days of the screening or else you have to do the screening again.!!) So off to the x ray machine I go. Hope to get news back and the first shot around Feb 21. Stay tuned for the latest so that we can compair notes. Also, I have had several other ASer's on the board from the Dallas area contact me. They too have hooked up with the study. Let's KICKAS Betty Edited by Betty on 02/10/02 10:57 PM (server time).
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