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Joined: Nov 2008
Posts: 82
Apprentice_AS_Kicker
Offline
Apprentice_AS_Kicker
Joined: Nov 2008
Posts: 82
Hi Fonzy,
I was thinking of you and wondering how the appointment went. Sorry it wasn't what you were hoping to hear!
Hang in there!
Hugs,
Mary




The harder I work, the luckier I get.—Thomas Jefferson
Joined: Nov 2008
Posts: 646
fonzy Offline OP
Master_Sergeant_AS_Kicker
OP Offline
Master_Sergeant_AS_Kicker
Joined: Nov 2008
Posts: 646
Thanks everyone ...im starting to get it sunk in my head this is a long term disease.
Thanks for all your caring well wishes.

Fonzy




Happy Trails To You Until We Meet Again




Joined: Sep 2001
Posts: 8,397
L
Lon Offline
Very_Addicted_to_AS_Kickin
Offline
Very_Addicted_to_AS_Kickin
L
Joined: Sep 2001
Posts: 8,397
Fonzy,
hi i was told 12 years ago that i had about 5 years of mobility left. yes, i have fused three verabre, lots of AS symptoms and all joints show some sign.
but i am not fused stiff. i am still quite active, tho in pain. stay the course, keep the faith and keep on living the life you and your loved ones choose.
you are inmy prayers


I keep the New Covenant,
when I fail....I am pulled
back into place by HIM.
Joined: Mar 2002
Posts: 9,552
Likes: 10
Offline
Joined: Mar 2002
Posts: 9,552
Likes: 10
Hey Fonzy,

Ask if you can take azulfadine rather than sulfasalazine... same drug, but azulfadine is enteric coated and therefore easier on stomach and works better.

Those two drugs were my miracle drugs. But important to get bloodwork done every 3 months.

Best to you,

Tim


AS may win some battles, but I will win the war.

KONK - Keep ON Kicking
Joined: Mar 2008
Posts: 295
T
Third_Degree_AS_Kicker
Offline
Third_Degree_AS_Kicker
T
Joined: Mar 2008
Posts: 295
Fonzy,

I am sorry to hear this! I do have to say though, you sound like you're taking it well. As well as you can take something like this.

Good luck to you, and as always, feel free to come here for encouragement!

Aly

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