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Oct 6th, 2025
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Administrator:
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Hi again James, I think you are very wise in your thought process. Forgive my terrible memory, I'd forgotten you need to have a tumor(s) removed, that would affect my thoughts on possible treatment options also. We cross each bridge as we come to it, one at a time, and I hope it's a comfort knowing you have good doctors to consult with along the way, and this caring bunch of friends on KA too! Take very good care, we are all pulling for you everyday!  mig
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Mig,
I was thinking that since methotrexate is also chemotherapy drug, then it might be good for the benign Schwannoma exiting my upper thoracic spine. I'm not sure if all Dmards are also used for chemotherapy, so I will need to look into that. When and if I end up taking either methotrexate or remicade, I would prefer them to be low dose and only taken long enough to help the colitis (if that's the problem I'm having now), since my AS pains are low.
My docs can't agree on whether I have one tumor or two tumors butted together. I think it's only one from what I saw in my scans, but the doctors would know more about that than I do. It hasn't grown since the last time they scanned me, so my next scan will be in about 5 months. Removal is definite, but a date hasn't been set yet.
Take care,
James.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Aug 2008
Posts: 184
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Aug 2008
Posts: 184 |
My thoughts are with you and I'm sorry you have so much on your plate. I hope you are able to stay strong and that things will get progressively better each day. Take care...Sue!
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
Quote:
I'll get through it though, I always have.
i think this is a good quote,
and a quote that i hope everyone can remember.
it is a quote that gives me stregnth.
and like you, i spend a lot of time listening to music.....
i find it to be good therapy.
sue
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Joined: Apr 2006
Posts: 2,371
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2006
Posts: 2,371 |
James, I so know how you feel. The depression, stomach, panic, like you, hoping it soon goes away.
you take care
Hugs
Gerri
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Joined: Jan 2003
Posts: 362
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Jan 2003
Posts: 362 |
Hi James,
Sorry I can't say I know what you are going through. Because I don't have the same issues you are dealing with.
But I can say hang in there, things have to get better for you.
Keep the faith,
Your friend
Doreen
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Gerri,
I'm sorry to hear that you have similar problems too.
I hope you are managing through it well.
thanks for the reply,
take care,
James.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Doreen,
Good to see you again. I'm feeling better overall and my mind isn't so cluttered now. My stomach is so-so but much better than yesterday.
thanks for your reply,
take care,
James.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
thanks again Sue,
take care,
James.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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OP
Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi Sue,
I'm glad you like that little one liner.
I use that in some of my posts for two reasons... one because it's true because I do manage to get through things, and two it's my way of telling people "Don't worry, I'll be fine, I'm just having another rough patch." I'm glad you like it.
Music is awesome. It helps me alot, gives me energy, it's soothing, and keeps me occupied as well as entertained. It's very therapeutic for me too.
Take care,
James.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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