|
Forums33
Topics44,197
Posts519,915
Members14,168
| |
Most Online3,221
Oct 6th, 2025
|
|
Administrator/owner:
John (Dragonslayer)
Administrator:
Melinda (mig)
WebAdmin:
Timo (Timo)
Administrator:
Brad (wolverinefan)
Moderators:
· Tim (Dotyisle)
· Chelsea (Kiwi)
· Megan (Megan)
· Wendy (WendyR)
· John (Cheerful)
· Chris (fyrfytr187)
|
|
If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
|
|
|
|
Joined: Aug 2008
Posts: 373
Fifth_Degree_AS_Kicker
|
Fifth_Degree_AS_Kicker
Joined: Aug 2008
Posts: 373 |
Welcome. I'm new hear as well. It's great to have a place were you don't have to feel like your alone.
Kim
|
|
|
|
|
Joined: Feb 2002
Posts: 2,222
Major_AS_Kicker
|
|
Major_AS_Kicker
Joined: Feb 2002
Posts: 2,222 |
I haven't been around much, so I need to play catch up. I hope your surgery was a success and without event.
Take care.
Cara
|
|
|
|
|
Joined: May 2008
Posts: 69
Active_Member
|
|
Active_Member
Joined: May 2008
Posts: 69 |
Hi Josh,
Welcome.... I am fairly new here also. I do not have AS, but my son does, he is 16 and used to run and play sports for High School. It took us about 2 years to get him correctly diagnosed and by the time we did he could barely walk to the school bus in the morning.
The good news is once he was correctly diagnosed and treated with enbrel he is doing much better. He no longer limps every day and he just got back on the ice playing hockey last night for the first time in a year. The medicine has helped so much.
I wish the same for you. I run 5 miles every day and I would be so upset if I couldn't do it any more.
Good luck and welcome!
My Son Alex diagnosed AS June 15, 2008.
|
|
|
|
|
Joined: Aug 2008
Posts: 11
New_Member
|
|
OP
New_Member
Joined: Aug 2008
Posts: 11 |
I glad to hear of your son's success with the medicine. I will be starting Remicade treatments as soon as my insurance company returns all of the paperwork. Hoping that I'll respond well to the meds. I was to the point of just accepting that I'll never be able to do anything again, but now there is some hope!
I was out in NJ last summer for my best friends wedding. I think it was in Cherry Hill?
|
|
|
|
|
Joined: May 2008
Posts: 69
Active_Member
|
|
Active_Member
Joined: May 2008
Posts: 69 |
Cherry Hill is about an hour from me. I live central Jersey.
My Son Alex diagnosed AS June 15, 2008.
|
|
|
|
|
Joined: Aug 2008
Posts: 11
New_Member
|
|
OP
New_Member
Joined: Aug 2008
Posts: 11 |
I'm not cut out for the driving there. I think I spent and extra $30 in tolls because of too many wrong turns! Oh, and those wierd turns, I think they were called jughandles? I probably should just stay in Iowa.
|
|
|
|
|
Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
|
|
Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
It's been awesome for me. Turned my life around completely. Now, 3 years in, I'm feeling the pain a bit more, but I'm still a ton better than I was!
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
|
|
|
|
|
Joined: Jan 2007
Posts: 2,188
Major_AS_Kicker
|
|
Major_AS_Kicker
Joined: Jan 2007
Posts: 2,188 |
Hi Josh...
I just wanted to say welcome and jump on in. You've found a great place.
|
|
|
|
|
Joined: Oct 2001
Posts: 2,576 Likes: 5
|
|
Joined: Oct 2001
Posts: 2,576 Likes: 5 |
Hey Cara,
As Glenn said, good to see you posting again! We all have to keep up the Michigan presence here on the board!
Brad
|
|
|
|
|
Joined: Oct 2001
Posts: 2,576 Likes: 5
|
|
Joined: Oct 2001
Posts: 2,576 Likes: 5 |
Hi Josh, Welcome to KA, glad you found us. I'm late to the party here, but I can see that many members have already given you lots of good advice, so I'll keep my post short and sweet. (Ask around, you'll learn that me staying "short and sweet' is one of the rarest events you'll witness here at KA!  As for your question about Remicade, I started on it about three months ago, and all I can say is "thank god." Since I started, I have felt better than I have in years. I was on Enbrel for five years, and it helped a lot for almost that entire time, but Remicade as been wayyyy better. Good luck getting approved by your insurance company. Brad
He who has a 'why' to live can bear with almost any 'how'.
--Friedrich Nietzsche
Sounds like everything takes time, discipline, and patience, and those are seven things I don't have.
--Jon Dore
|
|
|
|
0 members (),
428
guests, and
230
robots. |
|
Key:
Admin,
Global Mod,
Mod
|
|
|
|
