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Oct 6th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: May 2002
Posts: 2,370
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: May 2002
Posts: 2,370 |
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Joined: Jul 2007
Posts: 378
Fifth_Degree_AS_Kicker
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Fifth_Degree_AS_Kicker
Joined: Jul 2007
Posts: 378 |
Maybe this belongs on the "other" AS board - there are plenty of people that love to tussle over there! Brian 
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Quote:
I understand auto-immune diseases and its "ugly sisters" but it seems to me like hypochondria and Munchausen runs rampid in these halls.
Well, I did kind of take this personal...but I wasn't going to say anything because I am nice... 
You said that it seems like when one person says how they are feeling, alot of us jump on the bandwagon and say we feel the same......wouldn't that be the same thing as cancer?
If people have cancer wont they feel the same in how they feel?
If people have AS wont alot of us feel the same because we share the same illness?
If people have diabetes won't alot of people feel the same?
I guess maybe I am just dumb, I thought if you have a certain illness, there are symptoms and the millions of people that share that illness will feel the same and share the same symptoms.
But the quote above.....yea bad choice of words, it sounds like you are putting us down, making us feel like alot of family members, friends, Drs. have tried to make us feel...that is why we come here for support.
If your going to stay here you need to think about your choice of words and how they will affect others, alot of us here with being hypochondriacs also suffer from depression, but wait that is probly psychosymatic too...I am afraid to see what your opinion would be on that.
Just be nice, and play nice in the sandbox and you will do fine.
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Sep 2001
Posts: 6,391 Likes: 1
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,391 Likes: 1 |
I think that this thread has totally been blown out of proportion. As I said in my first post, I "think" that what was said, was not meant in the manner it was taken. It is no fun being attaked. In real life or a web site. Lets show him how compassion works. After all....we are all human, and every one of us has said things that people took the wrong way. Lets stop this before it gets even uglier...please? 
"You will find as you look back upon your life that the moments when you have truly lived are the moments when you have done things in the spirit of love........."   
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Joined: Sep 2007
Posts: 140
Journeyman_AS_Kicker
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OP
Journeyman_AS_Kicker
Joined: Sep 2007
Posts: 140 |
Everyone has a choice as to whether they will try relating in to what I'm saying and taking from it what you can or to relate out. Either way you shouldn't be insulted as my intentions are noble as complicated as they may be. I can't control how you feel but I am sorry if I have contributed towards your bitterness. While it seems that it is a fight for the last word you can have at it as I am finished on this topic. I said my piece[sic] and have moved on as quite a few others have personally expressed to me the same.
Until next time...love, peace and chicken grease.
See you in the other threads.  
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Joined: May 2002
Posts: 2,370
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: May 2002
Posts: 2,370 |
I disagree. The attack was started by daddio over there and maybe he should think before he speaks....if possible.
The End
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Joined: Oct 2007
Posts: 4
New_Member
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New_Member
Joined: Oct 2007
Posts: 4 |
This is my very first post to this site. So it's kind of scary to jump into this thread. But I see what may be a need to trust that the information you get will help you. There is no guarantee of that. We are only human and can only give you our experiences. What people hope to do is help others know they are not alone and help people have some semblence of control over their medical care even though we cannot totally control anything nor be certain of anything. We know our bodies better than the doctors do, but for some of us, it has taken years to get to this point, and I've found out that most of the pains I've experienced in addition to those of ulcerative colitis and Crohn's disease are due to spondyloarthropathy. I don't expect that all the answers I get here will be perfect for my case. I just trust that everyone will have good intentions. Sometimes an act of kindness can help in ways than accurate medical information cannot.
Well wishes,
Mav+
UC, 1989
One-step j-pouch, 1999
Crohn's of the pouch, 2002
Spondyloarthropathy, 2007
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Joined: Sep 2001
Posts: 6,391 Likes: 1
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,391 Likes: 1 |
It is your right to disagree, but when do you let it go?
"You will find as you look back upon your life that the moments when you have truly lived are the moments when you have done things in the spirit of love........."
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
first let me apologize to thomas if you wish i hadn't dug up this old post
(in case you've changed your views over time) and to those who have been around for awhile and don't want to see the same things over and over, but....
i am responding to this post because reading some of the really kind things that so many people said here was so worth it for me, that....
i thought some other new comers might benefit from reading this and i didn't want it to stay buried.
thanks to so many of you for what you said here.
sue
sue
Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)
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Joined: Jan 2008
Posts: 131
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Jan 2008
Posts: 131 |
yes, i was going to say the same thing, Sue....i feel so much better having found this website, knowing i'm not alone with my struggles every day. i mean, my husband is a great support to me, but he doesn't have AS and doesn't really understand what it's like to live in this body. i think only others with AS would really be able to understand. i think the original poster wasn't necessarily trying to be rude. the way that he phrased it was trying to be diplomatic. problem is that it's still basically like poking a stick into a hornet's nest, no matter how you say what he said. i guess i kind of feel like if someone has a problem with the essential premise of the board, then why come here at all? (the essential premise being that it's a bunch of people with AS trying to relate, find support, give support, and basically get through this life with sanity intact). it's okay to question things, but it really is a basic human instinct to want to share with others who are going through the very same things....it's not hypochondria or munchausen's at all!
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