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Oct 6th, 2025
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Aug 2007
Posts: 8
New_Member
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OP
New_Member
Joined: Aug 2007
Posts: 8 |
A friend on another forum referred me to this one, I am not sure if its OK to post here if I don't have AS. I have had Undifferentiated Connective Tissue Disorder for 10 years. I am on Enbrel, methotrexate, Imuran, Indomethacin, Avinza, Ambien, Xanax, and some other drugs for migraines.
I have a lot of pain in all of my joints, including my spine and SI joints. I am HLA-B27 negative, rheumatoid negative, and my diagnosis has remained stable for 10 years.
If it sounds like I should be posting here, please let me know.
Thanks, GardeniaGirl
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Joined: Apr 2006
Posts: 2,371
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2006
Posts: 2,371 |
Hi GardeniaGirl
Welcome to KickAS, to a family of friends.
Gerri
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Joined: Jul 2003
Posts: 2,962
Presidential_AS_Kicker
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Presidential_AS_Kicker
Joined: Jul 2003
Posts: 2,962 |
Hi GardeniaGirl,
Welcome to KickAS. This is a good place to be a part of. I know many people here that don't have AS, but are concerned that they might have it, or feel they were misdiagnosed. So there is no need to feel unwelcome. Feel free to ask away and search this forum as much as you like. There is a lot of good people and usable info here, so enjoy your stay.
Take care,
James.
HLA-B27+, JRA diagnosis in 1981, re-diagnosed as AS in 1988. Also iritis, colitis, and psoriasis. NSD + low carb helps me. My health makes it hard for me to post in a timely way.
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Welcome. We are glad to have you. I lived a lot of years with the same diagnosis you have and then they started popping up....AS, SLE, RA, OA, all the autoimmune diseases. Yes, you certainly belong here. I have AS but RA is my biggest problem at the moment. We can learn from you and you can learn from us and we can share good and bad times. This is a great forum. Come back often. Blessings. Possi 
![[Linked Image]](https://www.kickas.org/images/flowers/Smilingsun.gif) Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Hi & Welcome,
Yes you are in the right place. Feel free to jump right in.
All the meds you are on alot of us are on also or at least we know what you are talking about...how nice is that???...lol
Hope you are doing well,
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Aug 2007
Posts: 8
New_Member
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OP
New_Member
Joined: Aug 2007
Posts: 8 |
Thanks for all the warm welcomes! I have been reading through this forum and its nice to be in place where people most likely do understand what is going on.
I am going through a really difficult time with my disease - and have been for some time now. I can feel that its progressing, but I am getting too many side effects when I try to increase my med doses....so I am really suffering.
I am sure I will post some new threads on the screwy reactions my body has to a lot of drugs. My rheumatologist has told me that this problem is the major barrier to getting any more relief from my symptoms.
thanks again
GG
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Joined: Nov 2002
Posts: 6,928 Likes: 3
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Nov 2002
Posts: 6,928 Likes: 3 |
Sounds like me again. I have a list as long as my arm of things that I can't take because of my weird reactions to them. He says it goes along with the Lupus.  Maybe all autoimmune diseases?? Glad you are here.  Blessings. Possi
Possi ********************************************************* RUN WHEN YOU CAN, WALK IF YOU HAVE TO, CRAWL IF YOU MUST, JUST NEVER EVER GIVE UP! "A FRIEND HEARS THE SONG IN YOUR HEART AND SINGS IT TO YOU WHEN YOU CAN'T REMEMBER THE WORDS." "A FRIEND LOOKS THROUGH YOUR BROKEN FENCE TO ADMIRE YOUR FLOWERS."
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Joined: Jul 2001
Posts: 3,451
Gold AS Kicker
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Gold AS Kicker
Joined: Jul 2001
Posts: 3,451 |
Hello, You are more than welcome to join us with or without a diagnosis. Pain hurts and talking about it helps...at the very least it allows a vent for your frustrations. In the near future KA is going to join with GentleHugs.org which will have several other forum groups for related diseases. Perhaps GentleHugs should have a forum named "The Clueless Crew" for people who don't have any specific diagnosis but hurtin' nevertheless. Glad you found us 
Pete  [color:"green"] "Maybe the problems of two people don't amount to a hill of beans But this is our hill. And these are our beans!"[/color] - Lt. Frank Drebin
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Joined: Dec 2006
Posts: 193
First_Degree_AS_Kicker
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First_Degree_AS_Kicker
Joined: Dec 2006
Posts: 193 |
Welcome - I found this site to be a life saver. My family was so tired of hearing me comment about my frustrations concerning all of my various pains. In 2006 I was diagnosed with AS and I researched it for most of that year. In Feb 07 I started Remicade for six months. It helped a little but not what I expected. I decided to stop in August. My pain has accelerated to severe again so on Tuesday I will start Remicade again. Keep fighting the pain - I know how it can beat you down  - maybe tomorrow you will find your cure  ! Knowledge is power.
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi GG and welcome to KA!  I'm glad you found us. Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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