Kickas.org Forums Treatments, Drugs and Alternatives Anti TNF and other biological medications I'm a biomodified babe* !

Jeanna
it's been a while. Sorry to hear your sad news about your Grandmother.
But good news that you have been given the AntiTNF infusion and I do so hope it works for you.
I am still battling and bashing my head against a brick wall and my Rheumatologists door trying to get it.
18 months ago I went trough all the BASDAI/BATH tests and was told I was a good candidate for Enbrel and I would receive a letter informing when I could start it. A letter arrived alright letting me know that Warwickshire Health Trust had no money to fund the treatment and I would have to wait. Meanwhile I have had 3 infusions of Pamindronate and had absolutely nothing from it. Since late August/Sept iI have been going through the biggest flare I have ever experienced and so much pain I cannot describe it, except to say that taking 300mgs of Morphine 3 times a day plus some extra Oromorph liquid that it just about keeps me sane.
I have another appt soon so I 'll let you know what happens.
Give my love to Loz and the boys for me.
Don't forget I only live a stones throw away from you all.

Paul,

I feel so guilty knowing that you're literally an hour or so away and our different PCTs approach this situation so differently. Have you considered writing to your MP? We should catch up sometime and see if we can brainstorm any new lobbying ideas on your behalf.

We do need to hook up in the new year. You wouldn't believe half the stuff that has happened to me this year.

Thanks for you good thoughts. Can you PM your contact info, and I'll do similar. We really need to make sure we catch up.

Love and hugs to you and Pam,
Jeanna

Lovey, I'm keeping my fingers crossed that the moment on the stairs is a harbinger of wonderful things to come with the Remimiracle.

The coldness you felt seems to be de rigeur. I often feel it, as do several others at the clinic I go to. The exhaustion afterward could be a combination of the stress you've been under and the infusion. However, I often feel off for a couple of days post infusion and the day of, I'm toast.

Welcome to the world of anti-TNFs, sweetie!

Many hugs,

I also experience the coldness and absolutely wiped during and after the Remicade treatment.

OOOh, it's not just me who is freezing after an infusion then

I am going to mention it at my next infusion, and see if others have said the same thing here, which likely they have

Fishy

So sorry about your grandmother...

Sorry I didn't reply sooner. I'm in a very bad flare, so i haven't been using the computer. It takes a lot to get out of bed, or do anything for thar matter with only a good right hand.

I'm glad to hear you are finally on biologics. I myself will have my first shot of enbrel on tuesday, as long as my test results give me the green light. I hope we both start seeing some great results!!