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Oct 6th, 2025
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Joined: Jul 2006
Posts: 94
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Jul 2006
Posts: 94 |
My rheumy has given me this drug and I would like to know your experience with it did it help and when ?Also I have read somewhere that its given when you have swellings some kind but I dont have them only pain in neck and S/I and also wondering is it safe tro take during or before pregnancy???Many thanks to your answers Im 25 and would like to do mora damage them I have already-----
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Joined: Sep 2006
Posts: 121
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Sep 2006
Posts: 121 |
Hi Petra!
I use salazopyrin and think it's quite good. I don't hate it as much as I hate my other meds.
It's usually effective on back problems especially (including neck and SI)! I've heard it's not that effective on joint swellings.
It think it took me about 2 months to start working. When I then had a break of it - my inflammation got worse.
They say it's safe to use between the pregnancies and even when pregnant.. I'm not sure if one should trust into that.. it's a powerful drug after all.
My liver is handling it reasonably well but I know people who had to stop taking it because it was too much for their livers.
What drugs you've had before?
Kaisa
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Joined: Jul 2006
Posts: 94
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Jul 2006
Posts: 94 |
Only NSAID like Voltaren and Lubor but didnt help....
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Joined: Jun 2006
Posts: 144
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Jun 2006
Posts: 144 |
Petra,
Dragonslayer has mentioned a few times that the enteric coated versions of this drug are of better use for us, and are to be asked for.
I know that this drug is better for peripheral joints and less for axial, although bilko, I believe, said it was good to him all together.
Best.
People lose their health to gain money, and then they lose their money to save their health.
Because of thoughts of the future they forget the present, therefore not living for the present, nor for the future, and while living like they'll never die, they die like they've never lived.
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Joined: Jul 2006
Posts: 94
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Jul 2006
Posts: 94 |
Oded,
What is the enteric coated versions of this drug?
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Joined: Sep 2001
Posts: 2,364
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Sep 2001
Posts: 2,364 |
My AS has been mainly axial - spine and hips with other joints only a few times during very worst flares - but the enteric coated sulfa was effective in lowering ESR from 50+ down to 20+ when my then doc (Ebringer) stopped them. Though I have my doubts about using the stuff very long term; my brother did until his blood test results started to look worrying and he had to stop taking them. For the last few years they have been monitoring him at a haematology clinic. Anybody taking sulfa should have blood tested regularly.
'Then you should say what you mean,' the March Hare went on. 'I do,' Alice hastily replied; 'at least - at least I mean what I say - that's the same thing , you know.' 'Not the same thing a bit!' said the Hatter.
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Joined: Jun 2006
Posts: 144
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Jun 2006
Posts: 144 |
I think it's called Azulphidine or similar. Ask the doc. 
People lose their health to gain money, and then they lose their money to save their health.
Because of thoughts of the future they forget the present, therefore not living for the present, nor for the future, and while living like they'll never die, they die like they've never lived.
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Joined: Sep 2006
Posts: 121
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Sep 2006
Posts: 121 |
Salazopyrin EN is also enteric coated.
I have that.
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Joined: Aug 2005
Posts: 104
Journeyman_AS_Kicker
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Journeyman_AS_Kicker
Joined: Aug 2005
Posts: 104 |
Hi Petra
I've been on Salazopryn EC for over a year now and it has helped tremendously...specially in the middle of the night when the pain was unbearable...I would say 60% better than pre-drug days...takes about 2 -2 1/2 months to work but worth the wait
good luck with it
Jimmy
I've got AS, and the only prescription is "more cowbell"
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Joined: Jul 2006
Posts: 94
Apprentice_AS_Kicker
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OP
Apprentice_AS_Kicker
Joined: Jul 2006
Posts: 94 |
Do I have to take with Sulfasalazine a stomach protector pills or not???
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