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Oct 6th, 2025
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Administrator:
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If you want to use this QR code (Quick Response code) just save the image and paste it where you want. You can even print it and use it that way. Coffee cups, T-Shirts etc would all be good for the QR code.
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Joined: Mar 2002
Posts: 1,413
Silver_AS_Kicker
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Silver_AS_Kicker
Joined: Mar 2002
Posts: 1,413 |
Hello.  ..just want to  W-E-L-C-O-M-E YOU And Give you HOPE  ...TAKE CARE /BE WELL 
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Joined: Feb 2002
Posts: 942
Senior_AS_Kicker
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Senior_AS_Kicker
Joined: Feb 2002
Posts: 942 |
 Dee Dee, what are you doing in my lab!Whoops, sorry, wrong deedee. In any case...  Best regards, jcwinnie 
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Joined: May 2005
Posts: 403
Magical_Kicker
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Magical_Kicker
Joined: May 2005
Posts: 403 |
welcome, welcome, welcome!!  gentle hugs, teddi 
keep smiling... it matters!
FYI-Because of its literal definition ("fear of the marketplace"), agoraphobia is often misunderstood as a fear of crowds or a fear of open spaces. The clinical definition of agoraphobia is a fear of situations or places "from which escape might be difficult (or embarrassing) or in which help may not be available in the event" of a panic attack.
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi DeeDee and welcome to KA!  Glad you decided to join in the conversations. Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Oct 2001
Posts: 2,576 Likes: 5
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Joined: Oct 2001
Posts: 2,576 Likes: 5 |
Hi deedee,
Welcome to KA--glad you found us, and we're happy to have you on board. Don't hesitate to bring up any issues or questions that might be on your mind.
Brad
He who has a 'why' to live can bear with almost any 'how'.
--Friedrich Nietzsche
Sounds like everything takes time, discipline, and patience, and those are seven things I don't have.
--Jon Dore
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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Deedee,
welcome to KickAS, funny how long we manage before diagnosis......
David
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Joined: Mar 2004
Posts: 476
Warrior_AS_Kicker
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Warrior_AS_Kicker
Joined: Mar 2004
Posts: 476 |
Hi DeeDee, Welcome to KA you will find the site to be very informative and everyone is so helpful and understanding. I wish you the best and hope you get help with the pain real soon. Goog Luck, MAxine
"Mike's Mom"
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Joined: Sep 2001
Posts: 7,427
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 7,427 |
Welcome Deedee!! Glad to see you jumped in and posted! You wont find a better spot for support, info on meds, diet, and exercise..and all around venting and q's that we can try to answer... hope to see you around more! take care! 
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Joined: May 2005
Posts: 5
New_Member
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OP
New_Member
Joined: May 2005
Posts: 5 |
Thanks for the welcome everyone just a couple of questions, i have pain in whole of the top of my foot wen i stand or push clutch in to drive wondering if this is to do with AS or something different also the thing that worries me most is what effects the meds are going to have if taking them for a long time
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Hi DeeDee, I can't speak to your foot (although AS can affect feet), but as for your meds, it depends what you're on and how long you're on it. Also, it depends on the individual.
Some people can take NSAIDS for a long time with no gastro problems, others (like me) can't. I've been on prescription NSAIDS for a year and a half, had ulcers beginning within 8 months. Also, NSAIDS in long term use have been found to weaken our bone structure. Not good for people with AS.
You might want to see about getting one of the DMARDS or biologics. People have had very good results with them. Side effects range from minimal to not great (understatement), but frankly, as far as I'm concerned, anything that will halt the progression of this disease and give my body a rest for a few years is worth trying.
Also, take a look at the No Starch/Low Starch Diet. Many of us have had very good results in lowering pain and inflammation levels by eliminating or lowering starch intake.
And make sure that you stretch out every day and exercise as much as you can handle. This will stretch/strengthen your muscles, enabling them to do their jobs well, as well as strengthening your bones if you do weight training. Not only that, it can help you keep your weight down, ease the effects of stress/depression and many other things.
If you don't currently exercise, I would get your fitness level established by an expert and talk to your doctors first. Then start where you are. For us, exercise isn't always measured by the half hour/hour, but by the minute. And every little bit helps.
Hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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