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swog #165374 08/01/04 09:24 AM
Joined: Sep 2001
Posts: 6,762
Addicted_to_AS_Kickin
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Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,762
I have both RA and AS, guess I got lucky in the genetic lotto On my mother's side there was a lot of RA, and then two of her brothers had what was probably AS, diagnostics were not very good back then. AS and RA chew up the joints in a different way, and usually RA will go for specific joints (the fingers, toes, and again, symetrical involvement, both hands, both feet) and AS for others. I am always amazed at how some (certainly not all) doctors are so uneducated on so many aspects of autoimmune disorders, even when it's their alleged specialty, I have found the older the doctor, the less aware he or she is about all the ramifications and physical problems, probably studied AS for an afternoon seminar (or it was mentioned in passing while studying the better known RA), and haven't taken the time to stay current. AS (as well as the meds to treat it) can damage the kidneys, heart (I have valve problems due to AS), lungs, etc.

AS can also cause organ damage - - as can NSAIDS. NSAIDs are tough on the kidneys. Has your mom been on them over the years?

The biologics include Enbrel, Humira, Remicade. I am on one of the new DMARDS that is not a biologic (Arava) and have found blessed relief. An older DMARD is sulfasalazine, and while it is very effective in some people in controlling the symptoms it doesn't prevent further damage as do the biologics and Arava.

It's weird when we are young we are told we're too young to have arthritis by many well meaning folks who are clueless - - up to and including the aforementioned unaware doctors - - and then when we get older we're told, "Well, what do you expect? Everyone has aches and pains at your age."

Cheryl


My guy

If you can't be kind, at least have the decency to be vague. Author Unknown


My guy If you can't be kind, at least have the decency to be vague. Author Unknown
swog #165375 08/03/04 02:56 PM
Joined: Nov 2001
Posts: 18,187
Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187
Likes: 7
Hello there and welcome to KA!

You've already received some extremely good info, so I won't add to it except to say that there was research done back in the early 90s by a Scandinavian female researcher. She found that it's possible that women don't fuse early because of our birth giving hormones. Our pelvises have to stay flexible to give birth, so our SIs don't fuse until we are coming to the end of our birth giving years. It's one theory. Hell, it's the only theory I've been able to find. When it comes to that, it's the only research I've been able to find that focusses on women and AS.

I'm glad you're kidnapping your mum to the AS clinic for evaluation. From the sounds of things, she's probably had AS instead of RA all these years.

Many hugs,

Kat


"I haven't failed. I've just found 10,000 ways that don't work."- Thomas Edison


Kat

A life lived in fear is a life half lived.
"Strictly Ballroom"

Cheryl #165376 08/03/04 03:15 PM
Joined: Sep 2002
Posts: 1,763
Diamond_AS_Kicker
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Diamond_AS_Kicker
Joined: Sep 2002
Posts: 1,763
aches and pains at your age....ya gotta love it my hands are mostly useless my si is fused my hips are hurting shoulder and knee problems chest pains stiff and sore neck and I am only 40 ......been like this and getting worse for 20 years now more so the last 14 yrs so at what age is it suppose to happen...hahahha gotta hand it to the clueless they know everything about nothing......oak

I am older then I look and I feel older than I am



my little angels
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