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Joined: Sep 2001
Posts: 311
Fourth_Degree_AS_Kicker
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OP
Fourth_Degree_AS_Kicker
Joined: Sep 2001
Posts: 311 |
In remission: NSD + Immunotherapy
Hello, friends.
I’m happy announcying to you all that my AS is nowadays in remission. My knees and ankles aren’t swollen (I had almost forgotten original form of them), I walk almost normaly, not able to run yet but climbing the little hill near my home, able to bend and catch somnewhat from the floor, going down the stair better, my head turns more although two vertebrae of my neck are fussed... My family is very happy watching my improvement, and all the people who knows me says “what are you doing? You are in very good shape”. Also my psoriasis is much better.
Nowadays need only 25-50 mg Indocine, and I’m sure to let’it completely before summer.
I’ll tell you what I’m doing:
- No Starch Diet since summer 2001. I had improved on NSD but was lacking somewhat, always needing some Indocine... I know antibiotic alternative but being alone here, it was hard for me. NSD alone is not enough for me, but NSD is the key. - Since September 2003 I'm folloing a new therapy with one french doctor specialised on cancerology, gerontology and immunotherapy. One basque-french Kicker (on NSD diet also) and two other AS sufferers advised me to go with this doctor. Here the treatment of this doctor: * Some products of phitotherapy + homeopathy + oligotherapy: one anti-arthritic syrup, cupper and gold ampoules, homeopathyc bromelain, artichaut essence in pills, and sulfur capsules. (All productos well known in NSD and Alternetives Forums). * Colon hidrotherapy (one every two months). * Immunotherapy: intramuscular immunomodulator vaccine every 2-3 months. My doctor uses alopatic vaccine, but there is also other homeopathic vaccine (micro-immunotherapy). Before april I’l explain this therapy in Alternative Forum.
My improvement was steady since September. In December I was worse, maybe because some herbals (Desmodium Ascendens) for my liver: leaving them, I’ve been better. And since February my improvement is spectacular. And I’ll start to introduce some starch gradually, in little amounts: rice, lentills, beans...
AS is for life and one day our dragon will bite me again. And secuelae are here always. But I’m happy seeing that this dragon can be controlled, and secuelae perhaps can be ameliorated.
Yesterday, walking by the seashore, my wife told me: “Do you remember? One year ago- today- you almost died”. Yes. And one year latter, I don’t walk already like one robot.
Great hug for all you.
Pello
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Joined: Jun 2003
Posts: 3,581
Royal_AS_kicker
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Royal_AS_kicker
Joined: Jun 2003
Posts: 3,581 |
Pello,
Good news. one big KickAS
David
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Joined: Sep 2001
Posts: 2,364
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Sep 2001
Posts: 2,364 |
Hey Pello,
I don't think I could cope with the immunotherapy, not with all those long words. Perhaps this forum should switch to latin! But it's good to know your progress continues.
Best wishes
This we prescribe though no physician . . . Our doctors say this is no month to bleed. (Rich. II)
'Then you should say what you mean,' the March Hare went on. 'I do,' Alice hastily replied; 'at least - at least I mean what I say - that's the same thing , you know.' 'Not the same thing a bit!' said the Hatter.
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Joined: Sep 2001
Posts: 311
Fourth_Degree_AS_Kicker
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OP
Fourth_Degree_AS_Kicker
Joined: Sep 2001
Posts: 311 |
Bilko:
Not in latin but in french (and german) you may have some information here:
http://www.serolab.ch/f/prop_pharma.htm
Excuse my long words. I can use shorter terms: vaccine. One vaccine may be able to "calm" our immunity? Or I am other happy "placebo victim"? Perhaps. But this time, my improvement is spectacular.
Agur (bye).
Pello
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Joined: Nov 2003
Posts: 44
Member
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Member
Joined: Nov 2003
Posts: 44 |
Hi, very happy to hear you are in remission. That's good news. Will check the website you provided.
Lws3
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Joined: Jan 2003
Posts: 40
Member
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Member
Joined: Jan 2003
Posts: 40 |
Hello Pello, Congratulations on your improvement. Keep posting your progress. It is very encouraging to all of us. One of your comments puzzled me. You said, "Or am I just a happy 'placebo victim?'" Are you in a clinical trial and do not really know what medicine you are actually taking? What is the name of your doctor? And where is he located? Rowr "Rumors of my death are greatly exaggerated."Mark Twain
"Rumors of my death are greatly exaggerated."Mark Twain
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Joined: May 2002
Posts: 784
Magical_AS_Kicker
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Magical_AS_Kicker
Joined: May 2002
Posts: 784 |
Pello, Though there is a good translation facility in Google for the French website I thought to do a search in Pubmed. To my great surprise I could only find positive research but nothing more recent than 1987. For instance this one:
Pharmatherapeutica. 1986;4(9):577-84. Related Articles, Links
Immune therapy of osteoarthritis: an open assessment of clinical results with heterologous antibodies to articular tissue ('Serocytol').
Piccione F, Grecomoro G, Pinto B, Sanfilippo A.
Forty-three out-patients received treatment (6 months in 13 cases of spondylarthrosis, 12 months in 30 cases of gonarthrosis) with heterologous antibodies to articular tissue, given as 1 rectal suppository once every other day for periods of 4 weeks out of every 5. The treatment produced complete freedom from symptoms and signs of the illness in 5 (12%) patients and overall positive therapeutic results in 36 (84%), equally distributed in the disorders of the vertebral column and of the knee. This was accompanied by a significant improvement, both in terms of percentage improvement and the percentage of patients improved, of all monitored symptoms. The percentage improvement was similar for all components of the illness: pain, mobility and inflammatory-reactive component. No local or systemic side-reactions were recorded throughout the observation period, and there were no adverse effects on haematology, haematochemistry or renal function. A high percentage of patients reported a remarkable improvement in their quality of life, an overall measure of the therapeutic benefit-risk ratio as experienced by the individual patient.
Strange that there are no follow up studies for this product. It surely seems promising enough.
Why isn't there more research and why isn't everybody using this stuff ?
Gerard
"Tell me what kind of food you eat, and I will tell you what kind of man you are." -Anthelme Brillat Savarin -
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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
Pello, it's good to hear that you are doing so well now. You've found a way of treatment that works for you, and that is marvellous news! I hope it continues for a really, really long time. Hugs, Kat
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
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Joined: Sep 2001
Posts: 849
Ninja_AS_Kicker
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Ninja_AS_Kicker
Joined: Sep 2001
Posts: 849 |
Great news, God bless, Yoly
Bent but not broken. Yoly
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Joined: Mar 2004
Posts: 57
Active_Member
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Active_Member
Joined: Mar 2004
Posts: 57 |
Pello, I'm so glad to hear your news. It's truelly fantastic. Thanks for posting it has given me a little more hope for the future. Tiffany  Behind every cloud of smoke is a rainbow to be found.  
[smokin] Behind every cloud of smoke is a rainbow to be found. 
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