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#144110 01/26/04 02:49 AM
Joined: Jan 2004
Posts: 218
azmpv Offline OP
Second_Degree_AS_Kicker
OP Offline
Second_Degree_AS_Kicker
Joined: Jan 2004
Posts: 218
Diagnosed in 87 with AS, back pain since a teen.
After attending a support group meeting in Phoenix, Az. and realizing hey! there are
other people out there with AS. I met Dotyisle who introduced K AS to me and
my Mom who is my biggest supporter.
I have been on NSAID's since 87, just started Enbrel last week and after two injections,
I noticed less stiffness in the mornings. I am concerned about the side effects of Enbrel,
will cross that bridge when that time arrives.
I have neck and back fusion, both hips replaced since September 2002. Now no hip
pain, but activities very limited due to neck and back pain, what's new??? We all have
learned to live with the pain, I am bent over, and have been on SSDI for three years.
Hated that part, was very hard to stop working, but could not continue manual labor.
Great to find a site like this.


Joined: Sep 2001
Posts: 4,231
C
Offline
C
Joined: Sep 2001
Posts: 4,231
Hi William

WELCOME to the family. I'm Glad you got the chance to meet Tim and that he told you about us all here. I look foreward to learning more about you.

John


Joined: Dec 2003
Posts: 725
J
Decorated_AS_Kicker
Offline
Decorated_AS_Kicker
J
Joined: Dec 2003
Posts: 725
Hello William,
Welcome to Kick AS, I am only new myself. Here you will meet some great people, find tremendous support and a wealth of information. There are people here that use Enbrel and they will be great for you to talk to.
Best of luck from Debra in Australia.


Joined: Sep 2001
Posts: 6,391
Likes: 1
Addicted_to_AS_Kickin
Offline
Addicted_to_AS_Kickin
Joined: Sep 2001
Posts: 6,391
Likes: 1
Hi William

Welcome to KA. The best site around for AS.

Stick around and ask questions. You will be surprised at how friendly people are.

Lori







"You will find as you look back upon your life that the moments when you have truly lived are the moments when you have done things in the spirit of love........."



A
Anonymous
Unregistered
Anonymous
Unregistered
A
Hey Mike,
Glad you decided to join KickAS. Good to see you at the meeting on Saturday!!
Michelle

I wanna do it all/Visit Paris in the fall/Watch the Yankee's play ball/I wanna take it all in/Catch a few beads/Down at Mardi Gras/Start a tradition/Lay down the law/I wanna do it all

#144115 01/26/04 04:36 AM
Joined: Jan 2004
Posts: 218
azmpv Offline OP
Second_Degree_AS_Kicker
OP Offline
Second_Degree_AS_Kicker
Joined: Jan 2004
Posts: 218
Thanks Michelle, Maxine and Mike here, we are exploring the site and becoming
addicted real quickly. Nice to see you Saturday also. Maxine and Mike


Joined: Jun 2002
Posts: 154
J
First_Degree_AS_Kicker
Offline
First_Degree_AS_Kicker
J
Joined: Jun 2002
Posts: 154
Hi MIke,Welcome.I have been on Enbrel for almost 3 months now.It is my miriacle drug.I feel so much better.I too have a lot of fusion.I also have psoriatic Arthritis.After 3 injections my psoriasis was completely gone.I am not nearly as stiff.ANd today the weather turned really bad and I didn't have a flair.THat is amazing.I have not experienced any side effects at all.Hope the same will be for you.
Jim


Joined: Jan 2004
Posts: 218
azmpv Offline OP
Second_Degree_AS_Kicker
OP Offline
Second_Degree_AS_Kicker
Joined: Jan 2004
Posts: 218
Thanks for your response Jim, I am thrilled about this site.
Glad Enbrel is working for you, I also have Psoriasis and
will be grateful if I can be rid of that also. Mike


Joined: Sep 2001
Posts: 1,195
Grinning_AS_Kicker
Offline
Grinning_AS_Kicker
Joined: Sep 2001
Posts: 1,195
MIke
Another Mike here and I also am on Enbrel... Been a godsend for me and no trouble yet after a year... Welcome to KA...
Mike




Joined: May 2003
Posts: 715
W
Decorated_AS_Kicker
Offline
Decorated_AS_Kicker
W
Joined: May 2003
Posts: 715
Welcome to KICKAS.

I am glad you found this site, you will find a lot of information and support here for AS.
You are not alone.

Some of us here have fusions as well, including myself and I know it is difficult to live with. I too had to give up work, but I am trying to fight my way back.

Check out the other forums as well, especially the NSD No Starch Diet Forum, many people have posted great success on the diet.

Take Care
Wayne



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