I totally agree with Evelyn. ESR is not an indicator for AS. My ESR has never been elevated despite the severity of the disease. During some of my worst flares, that required hospitalization, tests showed normal ESR's. You do NEED to see a rheumy, especially one that specializes in AS. The majority of my fusion had already taken place by the time I was dx.
Keep your head up, and don't give up
Simone
