Debi,
You have certainly come to the right place! I've been lurking around here for ages and have found support like no where else. I don't post very often, but I come here everyday to see what's new. Just like you, I need to know I'm not alone in this. Just knowing that has made a huge difference in my life. I don't have an official diagnosis of AS, I've been told a couple of times that I have it and then afterward told by other dr.s that I don't. I gave up on getting a name for it, I've got constant pain and the folks here love me just the same.
Sounds like you've got a real gem for a husband. My husband wouldn't acknowledge that my pain was real for 20 years. Only after a dr. did an MRI and found a bunch of weird stuff on my spine. He sent me to the Mayo Clinic. We spent our 20th anniversary there. Ever since then he's been more understanding about it.
Take care and treasure the "good" days,
Valentine
