Hi All, I just received my first shot today.
I was diagnosed with AS in mid 2015. I've had it for 25-30 years and despite my efforts with numerous doctors, Physical Therapy, etc. it went undiagnosed until I decided to dig through my blood tests to see what was abnormal, and what type of specialist would treat the symptom.
The Rhuemy figured it out my first visit, but did not confirm until my labs came in 2 weeks later. HLA B27 positive. Insurance denied cimzin, recommended humira. I declined because of the side effects.
I've read voraciously over the last three years on AS, no and low starch helped but not enough. I was a very active young and older adult until 2014. I thought all of my exercising was making my body so miserable so I took a break. I got worse Much worse.
Last month the Rhuemy told be about cosentyx. The side effects don't seem as bad as the other alternatives/side effects. She said it would be a game changer. I am hopeful, but wonder if anyone else has had success. I am in the advanced stages of AS. Apparently my level is rare according to the doctor, especially since it was never diagnosed. The one thing I don't have with AS, is irritable bowel or digestion issues. I've had everything but that. I'll post in a week or so if I have any success/side effects etc. Any thoughts would be appreciated. Thank you for reading my ramble. 😀
