Originally Posted By AnitaC
Here’s my problem: my neurosurgeon says that my inability to lay flat or have pressure on my back has nothing to do with my surgery and or the incision site???


That comes across as dismissive but it may really just be over confidence. One must have a lot of confidence to do that type of surgery.

Originally Posted By AnitaC

I’ve been to the ER because I was worried something significant was going on and my doctor was leaving on vacation and he told me if I as that worried....”go to the ER”.
All of my labs were good, my blood pressure was fine etc. so they called his colleague ho also said that my symptoms were not related to my surgery and to see my regular doctor


That sounds like an "old-boys" club! But at least they didn't conspire to bury the mistake.

They will do a good job second time in. You're going to feel much better some time after the surgery. Medicine certainly does well in some cases. Now I just wish they knew how to avoid all this abnormal deterioration in the first place.

Anita, are the disks a location of an old injury? Infection and even our own immune system like to target those weak spots.


HLA-B27 neg, vague AS symptoms in 20s and early 30s
1993:fibromyalgia (age 25)
2013.07:Reverse blockage in a SCUBA accident
2013.08:Scratched by a sick cat
2013.09:Strange sore throat then meningitis
2014:Chronic inflammation at the base of the skull
2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis
NSD helped well and but was not perfect
2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal