Thanks for the replies.
Now you've got me thinking. I'd say it's a bit of both, I definitely have head pain around the base of the neck but a few times a month I get these headaches behind the eyes. I'm thinking I may be getting uveitis, but don't have the red eyes so not sure what to think. I am getting closer to 40, so ny eyesight might also be a cause. Maybe worth checking with the doctor, uveitis doesn't look pretty.
Would anyone know if uveitis is gradual as with AS, or sudden?
John, sorry to hear your AS advanced. It's definitely not great being in pain all the time as I've found out in the past year. I wish I didn't have to be here but I'm sure no one else does either, but great that I found this site. At this stage I'm still very active and I do hope that continues for many years to come. In my case, NSAIDS have certainly helped and I can sleep again after many months of waking at 3 or 4 am in pain. I'd say they have worked for me, but I have noticed they are No longer as effective as when I first started.
Is this common with anyone else?
