When I had to go off Humira all at once, I had terrible eye flares. They just went on and on for months, and required both steroid drops and dilating drops to finally get under control. It turns out that you're supposed to taper off of biologic drugs very, very slowly. Going off Enbrel, you're putting extraordinary strain on your immune system! But the good news is, once your body adjusts to life without Enbrel, your eye situation should stabilize, provided you aren't constantly re-triggering it.

I don't know about the preserved meats in your diet-- maybe the salt has starch, or maybe there are other preservatives in there that are triggering. Or it might just be the going-off-Enbrel situation. I'm so sorry you're going through this.

Bettyrawker, it's great to read your suggestions!

Best,

EA


I have Reiter's Syndrome, an HLA-B27 disease similar to AS. Diagnosed 2008. I used Humira and methotrexate until 2012, when I was diagnosed with leiomyosarcoma and given a hysterectomy and a 26% chance of 5-year survival. Cancer-free ever since I stopped taking Humira and methotrexate; trying to trust medicine again. In a mobility scooter since 2013 with joint pain and disease-related stress fractures. Uveitis. Eyes and joints flare whenever I stray from a severely limited diet (NSD+).