Mom2-
Many of us have to learn to love and care for those in pain. It is a bit easier if we see the trauma the scab or the crunch. Some will never learn to give TLC.
But it is worth the effort to teach and educate others as to how we feel, generally many will not understand because it is not their pain.
Try and not to think less of those who do not understand, consider that they do not understand, partly because our society is not geared to caregiving.
You do need to find the support necessary for the life you live. Because this is a lonely disease.
