Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group I worry,

I'm a little better painwise for now.

But I have problems shaking the thought of what I have been going through. Do any of you have that? -I've had three or four seperate heavy "incidents" like this last one through my life and I was always blessed that when they passed, they passed from my mind completely as well.

But this time, it was so heavy and I can't just shrug it off and think "it's just my anxiety" , as I don't believe that anymore.

Just to sum it up:

I have (and am) struggling with muscle and joint pains.

I have what feels like altered sensory nerve episodes. (skin will feel wet or cold even when there is no reason to. And when it does it's like its ever increasing in magnitude. (I feel colder and colder and colder etc) I get bursts of increased smell or taste. And so on.

Fatigue

Severe stomach problems (GERD, bleeding from the food pipe, constipation, diarrhea etc)

Lacking energy to do choirs and things I need to get done.

Loss of sensation of breathing. (Yeah I breath....I just cant feel it happening even when trying. Also episodic)

Extreme need for sleep. (I can get home from work, fall asleep then wake up after 5 hours, stay awake for 1 hour then sleep through the night again.)

Larger muscles twitching and spasming. (on the lower right arm and in the front of me left shoulder)

Dizzyness and lack of coordination

Anxiety and depression (oh yes, I have to face they are both there. The nerve symptoms scare me and give me anxiety) Depression, well I call it that when I feel so exhausted and cant get anything started.)



So now I guess I worry if it could be a nerve disease. Like MS, or my personal nightmare: ALS. I guess it may just be my mind running off with me, but I struggle a little dealing with it,I admit.

Any advice? -And do any of you feel scared of what the heck is going on, when you have no diagnosis?