I just don't know. At age 22 to 25, I was in a study. As part of that study for AS, I met many individual in varying stages of the disease. I met a woman who was fused straight and I thought she was fortunate (please understand compared to others who had not fused straight). She told me, at that time, to maintain my posture despite pain at all times and how to sleep.

I have that ingrained in me. I have no answers. I can access my reports from that study. I inquired. For now I am just so tired of the medical community. I do not know how my reports from then (December also) are conflicting. I asked the rheumy if she had those reports or had seen them. She said they were irrelevant and that it was normal to have sever SI pain at that age.

I can not find anything to explain my height loss. I have mentioned it to that rheumy as part of my question list but I never got that far. I asked about my symptoms. I was examined and out the office in less than 10 minutes. I feel defeated and was somehow looking to explain my height loss because honestly that they can't overlook that because I have my former GP's chart until I was 29. In that chart AS is discussed.

Thank you very much

Shel

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