Originally Posted By: aussiegirl
thanks Sue. From memory you said in that thread you may try a higher dose to try and prevent the flares. Good luck if you do go that way and please let us know if it helps.

take care
Trish
xx


LOL! i love when others remember what i said better than i remember! now that you say that, yes, i do remember saying that.

i have thought about it, but thought i'd give the experiment a little time.

plus have been thinking about going to a doctor in town who regularly prescribes LDN, who i think would be more open to experimenting with dosages; only catch is she doesn't take insurance so each visit would be rather pricey, still thinking about it though.

it was such a chore getting my rheumy to say yes to the LDN, don't want to give him any reason to say no. and when he didn't even want to hear how i was doing on it, well, decided to just ask him to renew it rather than discuss it.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)