well then, what kind of "inflammatory arthritis" do you have? i thought that was just a general umbrella term for "we know you have some kind of inflammatory arthritis / autoimmune disease, but we just can't decide which one it is (the symptoms don't fall under any one disease well enough) or it may be one that doesn't have a name yet". can "inflammatory arthritis" be a specific "disease" and more importantly, my rheumy seems to think he can't allow me to try drugs past the NSAIDs (though i talked him in to LDN) until he's classified exactly which specific disease i have. also, how did they decide that you don't have AS? what symptoms do you have, do you not have to make this determination? and do you still get to keep the embrel?

just curious...........

though also selfishly asking because i have inflammation of the entheses without any evidence of fusing, gastritis without any evidence of IBD, so very similar to the known spondyloarthropathies but different. most of my doctors either think its a form of spondy or "some as of yet to be discovered form of autoimmune inflammatory arthritis" which would be ok with me if they'd just give me the drugs! though the LDN and flector patches are making life more bearable (to go along with the zanaflex that i've taken since the early 2000s)


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)