THanks Wendy, you're such a sweetheart. My parents are in the interior of BC (parents were both born on the island, I spent most of my childhood summers on Hornby Island), and my mom would have whisked me back home tonight to take care of me if she wasn't so sick herself and having a colonoscopy done tomorrow in Kamloops. This is her second scope in a short time - it looks like she might have colitis, in addition to AS, and a host of other autoimmune goodies.
And since Glen just forked over a serious sum for me to be part of a private clinic here, it doesn't make much sense to leave it behind, you know? I always miss my mom when I'm sick. lol I'm such a suck. I know she worries about me too much, and that's not good for her either. Actually, I recently got back from a week there - I didn't think my mom was going to let me back on plane when I left.
I'm really close with my parents, still their little girl.
I haven't eaten much in the past 3 weeks, but before that, trust me, I am a freak about healthy eating; so is my boyfriend. He's the one who makes sure I only eat the toppings off the pizza and not cheat on the NSD. lol My bloodwork so far is all normal - vitamins, protein, etc. In the past few weeks I've had to get creative to make sure I'm getting at least a little bit in me so that I don't ruin myself - lots going through the blender.
My new doc is known as "Dr. House" in the clinic, and my first (and only so far) visit with him was 2 hours. He agreed that my previous doctors weren't looking at the whole picture, so I hope that means he's going to improve on that. That's good pointed that out... right? I hope. He knows "the whole person" is a big thing for me anyways; I emphasized that. He doesn't seem very good at following through on some requests though... a whole other story.
For meds right now, I'm only taking a bit of morphine and a load of gabapentin - I've wondered if somehow the high dose of gaba could be doing something to me...hmm... but the nausea started long before I was introduced to gaba. I've taken morphine on and off for years with no probs, so I don't think that's it either.
Also, when I spent a month (mid july to mid aug) on nabilone (synthetic marijuana) the nausea almost totally disappeared. That was supposed to help the neuropathy (which it didn't at all), so it was discontinued, and that's when the vomiting came back with a vengeance.
No one has yet to order a urine test, which is strange. Come to think of it, I haven't been asked for a urine test for... wow, probably a decade. I'll get on that.
I know there is something going on here... I just bugs me that I can't figure it out. I can always figure it out. I was the one who first figured my mom and I had AS. One thing that scares me - if you google amyloidosis and tongue - that's what mine looks like.
Puffy with scalloped sides.
I hit a really low point a couple of nights ago... and ended up calling Glen and telling him I needed him home. Not sure if that went over very well, but I know I'm at the point where I need help. He's got his own drama to deal with in his own life... everything is so complicated right now. And here I am blabbing on again.... thanks for listening Wendy, and anyone else who's managed to stay with me through my whinging tonight. lol Just one of those days, you know?
