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Joined: Nov 2001
Posts: 18,187 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,187 Likes: 7 |
I'm so glad to hear that the Enbrel helps. I understand your fears and, certainly, with your family history, the doctors should be watching your blood work on a regular basis. That said, to my mind, even tho I have completely changed my lifestyle to better deal with my AS, Remicade is a risk work taking. It gave me a life I didn't know I could have. I first started on it 2.5 years ago (almost 4 years post diagnosis and after over 20 years of living with AS and not knowing it) and it had dramatic results for me with ease of mobility and energy levels. I too worry that I might get a lymphoma, however, having done as much research as my science phobic brain can handle, I've realized that lymphoma is relatively rare in the general public (as these things go anyway) and although we have an increased risk on the biologics, our chances of being run over as we cross the road are still greater.
I'm very glad to hear you do yoga. For me the key is pilates and my dance classes. I also do weight training (but that's kind of fallen by the wayside this fall - I'll pick it up again after the holidays). I would suggest that over the next few months until your Enbrel supply runs out, you make the dietary changes you want to make. Learn to live with them long before the Enbrel runs out. That way, when you must be without it, any benefits of the diet will have had time to kick in. It can take up to 2 months for some people to show results on dietary changes. So, if you start now, you should have a fairly good idea of how much it's working for you when you stop the Enbrel.
As for 'what if' ... Ben, life is a series of what ifs. If we lived our lives in fear of what might happen at some nebulous time in the future, we'd never do anything. All you can do is get the information, make your decisions based on that information and what's right for you. Things will happen, or they won't. There's no point worrying about it when there is so much of life infront of you today.
Hugs,
Kat
A life lived in fear is a life half lived. "Strictly Ballroom"
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