Hi everyone
Hope everyone is well. I went and had methylprednisolone in an IV last week, which was pretty uneventful apart from a bit of a problem with the IV. They did a blood sugar check and BP while I was there and my blood sugar was 4.7 which I was really pleased about and my BP was 100/70, which is pretty normal. At least things are good on that side of health!
All I had to do was sit there for 3.5 hours and read which was not too bad. I kinda felt tired toward the end of the day and that was about it! The next day I woke up and I looked like I was severely sunburnt (I thought my weird rash had come back again) and had a 'funny' heartbeat, which I found out later in the day were quite normal. That has subsided which is fine. I started taking Arava straight after the infusion - and that has a few unpleasant side effects
. I am starting to feel much better now (I think this is due to the methylpred mainly at the moment), AS and RA wise. I have more mobility, my pain levels are low and so are my fatigue levels! I hope this works! Not so sure about the side effects, though. They are pretty much run of the mill ones but they are still not that great. I guess its a case of waiting and seeing. I think I am willing to put up with them - I just want to feel better. The fact that I can't fall pregnant while I am on this and therefore have decided to wait for another baby has raised a few eyebrows! My friend (who happens to be my partner's sister in law) has told me that I am being selfish by delaying having another child just so I can take this medication . Trust me, if I didn't have to take it, I wouldn't be! She made me feel awful
. I thought she would understand, as her father has lupus. I said to her that I want to enjoy the daughter I already have and if that means taking Arava for however long, well thats the way it has to be. I am sad that I can't have another baby right now, but I think I would rather have a chance of being well and enjoy the lovely little girl I already have at the moment. If things go well a bit later on...we can try for another baby then!
Cheers,
Jess
