Hi Janet,
Sorry to hear you're having such a rough time. Sounds like you're in a flare. Who knows if it's something that will continue or not. We're all different and it depends on how aggressive the AS is getting.
I know you've had As for some time now, but you didn't mention if you have a rheumy or not. Sorry, I am a little slow sometimes and miss things now and then. I ask, because it sounds like that's who you should be dealing with right now. They're usually better at finding the right things for pain and aren't as afraid to prescribe as a GP. I know I went through everything under the sun as far as pain meds. Was either allergic or bothered my stomach. Finally found the right ones for me and been taking them for almost 4 years now. It gave me some of my life back. Was hesitant to try them at first, but life got so painful and limited that I became desperate.
I know what you mean as far as your kids seeing and knowing what their mom is going through. Know matter how hard we try to keep them from seeing the pain, we're unable to pull it off at times. They are smarter than we think and sometimes know us better than we know ourselves. Luckily my kids were in their teens when AS hit me hard.
It was still hard on them, but they were very understanding, although none of us truly understood at the time what was going on. How mom was in bed one day..not being able to move, then be up riding a bike with them the next was something we all tried to figure out.
Glad to see your here and posting again.
Hope the pain lets up soon and you start feeling better.
Hugs,
Lisa
