Hi Wanye,
My rehmy has a friend that is starting a trial in a few months that she will get me on if nothing else eventuates.
I can see that they need something to measure progress but it is know that 25% of AS suffers do not have elevated ESR's ever. Mine went to 25 when I was hospitalised cause I couldn't walk, at that point my ferrotin levels were over 400 (150 is the upper limit of normal) and have not gone back into a normal range since then (May/June last year). The other thing that really bugs me is that I have more recent CT's than the xray that show significant changes in the 6 weeks after the xray, they won't accept these results and want me to have more xrays. My rehumy is quite concerned that I'm only 25 and not had kids yet and my ovaries have had a signifcant amount of radiation.
Anyway enough whinging!!! Finally we are getting some spring weather down here so hopefully they warmer weather will give me a bit of a break!!
Take care and keep smiling,
Rose
