Gosh, you sound like we share the same body, I also have had AS for years, and my poor feet are a mess! One foot (the left) is actually fused between the ankle and the heel, and my toes are heading east when my heel is listing west. Makes buying shoes a real hassle, they simply don't make shoes to fit feet like mine. Luckily I live in Florida and so wear sandals most of the year. My SIs are now fused, my lumbar spine is squishing down and have some nerve damage now, numb soles of both feet and numb right thigh, and no reflexes in either leg. They can pound that rubber hammer all they want, the feet won't jump. Due to peripheral damage I also have a DX of RA. Not sure if I actually have RA as well as AS, but the docs keep the DX active because it gives me a fast track to the new DMARDS that of course have not been approved for AS, only RA. I'm on a good one now, has relieved just about all symptoms, don't take pain pills any more and an NSAID only once in a blue moon, usually from overexercising. I swim daily and that helps to keep me feeling limber and to keep my weight down. Also work out with hand weights and Pilates bands three times a week.
Cheryl
If you can't be a good example you'll just have to serve as a horrible warning. Jennifer Cruisie

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