Hi DebbieZ, nice to meet you :)
I think it sounds like AS. And since your close relatives have AS, I think you may too. Trying NSD may be a way to find out, it worked for me.. See if pain eases.. And you should change your rheumy too, (I know how it feels not to get answers to your questions.. Read all the forums and see if you can learn more about AS) And I think you should see someone who is an expert in AS..
Take care..
Meric :)