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Joined: Mar 2016
Posts: 39
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OP
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Joined: Mar 2016
Posts: 39 |
Hello together,
I am dealing with a flare since the beginning of the year. It was ugly (iritis, enthesitis, back pain), but it is much better since 2-3 month. But I still feel pain in my back, more or less. It is an up and down. So, there is definitely a steady inflammation. I avoid coffee and every kind of caffeine since 10 days, because I had the feeling that I drank too much, and after a few days with some abstinence symptoms my back pain nearly vanished. Unfortunately it is coming back now. Fortunately I don't have to take any meds yet.
So, I think, because I am pretty straight in avoiding starch for a long time, that I have a problem with my guts.
That's my list of food:
fruits: blueberrys, rasperries, Oranges
vegetables: kohlrabi (a lot), broccoli (a lot), sprouts (sometimes), salad, sauerkraut, olives (green and black, a lot)
fish and meat: a lot of chicken, a lot of tuna, smoked salmon, smoked trout, sardines, pork, sometimes sausages or bacon but I try to avoid them because of the additives, sometimes red meat
further: oliveoil, salt, oregano
Supplements: magnesium, vitamin D, today I started with psyllium husks
Drinks: water, teas: rosehip, peppermint, camomile
no dairy, seeds (including nuts), no caffeine
Do you guys have any suggestions, what I can do or what possibly I do wrong?
Thanks a lot! Rayd
Last edited by Rayd; 11/12/16 09:07 PM.
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Joined: Sep 2001
Posts: 6,164 Likes: 13
AS Czar
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AS Czar
Joined: Sep 2001
Posts: 6,164 Likes: 13 |
Hello, Rayd:
Hope You can take some borage seed oil (>6 capsules) before retiring evenings. Good on with the EVOO, but supplements should include lysine, vitC, vitE, Bcomplex, and extra niacinamide. Good to eat some probiotic yoghurt (~2oz per day it is dairy) and more diet variety. Okra is good, nuts like almonds, walnuts, macadamias, and Brazil. Avoid sausages for their additives, and especially EGGS!
Hope You can get rid of the remaining pains and keep the iritis far away!
HEALTH, John
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Joined: Mar 2016
Posts: 39
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Joined: Mar 2016
Posts: 39 |
Hello John,
thank you very much for your help!
I definitely need more variety in my diet. I am just afraid to eat something wrong. I do not eat eggs anymore. I did a lot. Maybe that was part of the problem.
@ yoghurt: I will try probiotic yoghurt. @ nuts: I read, that nuts are not so easy for the digestic system to deal with. Do you have other experience? @ borage seed oil capsules: never heard of this before. Sounds very good. I will buy some and try them. @ iritis: I think, that I react to too much sugar with iritis. So I avoid sugar.
Hope you are doing well! Rayd
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Joined: Sep 2001
Posts: 6,164 Likes: 13
AS Czar
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AS Czar
Joined: Sep 2001
Posts: 6,164 Likes: 13 |
Hi, Rayd:
Nuts are difficult to digest, but that does not mean they are necessarily hard upon our digestive tracts; it means there is residual undigested bulk that was not used as a substrate for bacteria--that is a very good thing.
In small amounts, yoghurt can be medicinal; good to begin with just 2oz per day to see how You react.
Many of us have candidiasis that is exacerbated by sugar and will make AS worse as a secondary reaction; it is very important to treat this before AS can be substantially improved through diet.
Wishing You every success and much renewed HEALTH,
John
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Joined: Mar 2016
Posts: 39
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Joined: Mar 2016
Posts: 39 |
Hi John,
thanks again for Your help. I suspected that maybe candida could be a problem and tried a treatment but I was not really straight about it, so I think I should do it again. I didn't knew, that many of us have this problem. I still have some pain but don't need medication. Maybe because I don't eat any sugar (just some berries).
Wish You all the best! Rayd
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Joined: Apr 2002
Posts: 2,485
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2002
Posts: 2,485 |
Sausage - oh my goodness avoid! It is absolutely the norm for starchy fillers to be added. Gluten free will not help one bit. Fruit - may I suggest : try pears and grapes. Grapes are berries too of course . Have fruit on a empty stomach, that's what works best for me. Not really an AS issue per se but rather a fermentative & candida issue. Fruit fast - I used to do this frequently in order to push the reset button on all the inflammation. Fruit and water, juice and tea for three days. Three days is what it took for me - your mileage may vary. Once the pain is gone you can introduce other foods again one at a time and see how you react. Yoghurt - make sure it has no inulin or FOS added (fructo oligosacharide). I found that the powdered inulin which they use was very provocative and brought on inflammation. I initially had problems with natural inulin sources (a complex carb comparable to starch) but I found I could improve tolerance to natural sources via gradual introduction. The worst offenders for which it is artificially added is probiotic yoghurt and probiotic pills. Beware. Tea - ok here is a weird thing I used to get : if I steeped the leaves too long then the tannins would actually make me sore! I know it's weird, and I can't say for sure what the mechanism is (die off? Tired liver?). And yet it is quite repeatable and many different teas would behave this way, even peppermint. Probably something unique to me but thought I should mention it.
what I can eat on the diet (click here) -- my blog -- contact me (PM is broken) "Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)
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Joined: Apr 2002
Posts: 2,485
Colonel_AS_Kicker
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Colonel_AS_Kicker
Joined: Apr 2002
Posts: 2,485 |
Supplements - check these with iodine of course. Psyllium - I was never quite sure about this one. I seem to recall it caused some skin problems. I don't know.. maybe try without for a week. Nuts - blanched almonds (no skin) and hazelnut are good. Almond flour is great for baking cakes. Tahini bread - try this recipe sometime when you are ready https://sites.google.com/site/cureankylosingspondylitis/recipes/tahinibread
what I can eat on the diet (click here) -- my blog -- contact me (PM is broken) "Some men, in truth, live that they may eat, as the irrational creatures, 'whose life is their belly, and nothing else.' But the Instructor enjoins us to eat that we may live." -- Clement of Alexandria (about 200 AD)
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Joined: Mar 2016
Posts: 39
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Hi zark,
thank you very much for sharing your experience!
I have also problems with natural inulin sources.
The thing with the tea is very interesting. Maybe you will find out, what is going on and share with us.
I read about that the digestition deals best with fructose on an empty stomach.
I hesitate to fast, because I am vey skinny (1,90 m, 74 kg), so I try to avoid it, despite I am very curious how it works (and I am sure, that it does!)
Rayd
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Joined: Dec 2012
Posts: 57
Active_Member
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Active_Member
Joined: Dec 2012
Posts: 57 |
My husband reacts to some meats from different sources
Get the best, freshest quality you can; eg organic
Try to avoid anything out of a tin
Last edited by Bel; 12/08/16 07:40 PM.
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Joined: Mar 2016
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Hi Bel,
thanks! But why should I avoid anything out of the tin? What about tuna without any other ingredients?
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