Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group Achy fluey feeling some mornings or days

I seem to get this strange symptom. Some mornings I just wake up like Im hit by a bus. My eyes ache and so do my sinuses, and I feel kinda achy all over. its basically like when you have a bad cold. It happens maybe once a month and can either lead into a bad AS flare up or just subside.
Nothing seems to help it at the moment.

when a flare is developing in me, i'll have a week or two of feeling like i'm coming down with something.......occasionally if i sleep a lot, like i do when i'm getting sick, i can get through it without flaring terribly........but more often, its the harbinger of a serious flare.

i had to get to a point of feeling well in between flares to recognize it. but my current rheumy (and other doctors) have me to that point.

as you said, nothing really relieves it, except for whatever relieves the flare. this last time, i tried a pred taper and that worked. i had been going into a flare:

for about a week, my ribs were more of a problem than normal, my chiro had more to do for me than normal, then i started feeling "achy fluey" as my GI tract started complaining, then came the mouth sores and the "irritated eyes" and on the day before my SI joint joined in, i truly felt like i do when i'm sick, and just sat in my recliner and babied myself all day. i wonder if i had forced myself to go take a walk that day, if that would have changed its course?

but when the SI joint kicked in, i started the pred. and just like magic, all the symptoms dramatically changed. the achy fluey feeling was gone in less than a day. everything else was all better within 2-3 days.

yeah that sounds pretty familiar. I might talk to my Rheumy about that steroid. thanks.

i also feel like this often. it usually happens when i'm sleeping: feverish, aching, flu-like pain. i take ibuprofen before bedtime to help fever.

not much else i find that helps.

So what if you feel like this for weeks on end does that just mean you're in a flare?

not sure, as my spondy manifests itself as flares that are much different than in between flares. for me its a wild roller coaster ride.

others here tend to have a more constant state of thing. i personally don't know what that is like. but others here may chime in.