Kickas.org Forums Treatments, Drugs and Alternatives Alternatives Diving Deep

Sue,

Thanks! Hugs to you. You're a good friend, you keep me going.

Jaybird,

My doc has treated quite a few Lyme patients. (One of them referred me). I hope that means he has the knowledge/know how. He's been at it for about 35 years and has people coming to him from all over the globe. Thanks for the tips and explanations. I always manage to think up my questions for the doc when I'm not right in front of him. I do believe the crappy feeling is the detox/die off because it goes away after 4 days. Its a good thing. Its what I want, I just like to whine a little during the process. lol. (ok, maybe a lot )

Steve,

Wow, I hate feeling dizzy. That is so cool the scuba diving was a dizzy-free zone! We desperately need a cure/treatment for this disease that involves fun and a beach!

Take Care!

Craig,

Lol, Thanks! I don't know if I'm tough, maybe just annoyingly persistent at not being ready to accept this as my fate. A warrior princess, that is nice! Maybe I could work that into my Halloween costume this year!

Thanks for the kind words!

Sounds like you are in good hands. Good luck!

P.S. I recently started IV Vit C (along with other nutrients) again.

Jay,

How much C? How often? How much does it cost you??

(I'm nosey, huh!!)

Let me know how it goes for you. I have had it 4 times now, 50K twice and 40K twice. A comedy of errors, really. IV's slip out and fill my hand, or the inside of my elbow. My veins suck. Had one IV in my leg.

Back is now so stiff tonight that I stay bent forward from the low back after standing up. That's pretty.

I saw my GP today and asked if he knew anything about chelating the mercury out with a DMPS provocation challenge and urine catch. (The wannabe scientist in me wanting quantitative proof, the cheapskate in me wanting it done for my $15 copay.)

Well, Rats. He's never heard of it, and he's not going to use me as guinea pig. Double Rats. He also doesn't know anyone who does. I read of a clinic in Oceanside, CA. TIME for a vacation.

The occasional NSAID is doing nothing for me anymore. Eating terribly. Prayed for death again last night. Back on the diet wagon tomorrow. My wrists still have about 3 cm of movement. I'm traveling for chelation once every two weeks now. Going to be a long process. Even longer if I don't control my eating.

Good luck.
-Donette

Hey Pinocchio (nosy, get it? not so funny),

Sorry to learn that you are experiencing so much pain and distress. Maybe you are doing too much, too quickly? Don't forget to detox if you are killing things off. Definitely drink lots of fluids (clean water preferably). Get back on that diet whatever you do! It's tough, but we become our own worst enemy. It kills me when I stray. I can tolerate some things at one meal. However, if I try to eat them at consecutive meals or on consecutive days, I feel it.

I am doing 20g this time around. My doctor, even though I had done 10-20-30-40-50, sustain at 50g when I did them for awhile back in 2009, is doing that again. Not real happy about it, but that is the way he does things. Last time was 10g. This time is 20g.

He charges $85 at 10g and 20g, $100 above those dosages. I don't know why it is more at 30g and above, but that is what it is. However, he also puts in B-vitamins and some minerals (at least last go round in 2009 he put in minerals). I forget to query him at last appointment.

I plan on going once per month. Last time the frequency was higher, but I can only make once monthly now.

I am only doing this for overall health/well being while I figure some other things out. This MD does the DMPS challenge for heavy metals, but I hardly think you want to travel here. California is much more appealing for a vacation.

I hope things start going better for you.

bacon and an egg for breakfast. I am doing much better today. I broke out an old methadone last night and my back feels sooooo much better today. Sometimes I think our pain hormones need a whack over the head. Only slightly dizzy, but I feel better today than I have since June 3rd. Yay. I am making dinner for a friend and her family. THAT's how good I feel. So nice to be able to be back on the giving end of things.

I had an epiphany last night that there is a doc close by who holistically treats autism. I bet she does the DMPS.

Oy, these doctor's and their "carefulness." I'm sure if I were in their shoes I'd do the same thing. But sheesh. Sometimes I wish they would just let me call the shots for my own body. I guess I need to get serious about getting my own Medical Degree. I would be the best doctor ever. I could write Rx's if I wanted to, but I would try every natural remedy I could first. That way I could bill insurance for the few and far between who still have it. lol.

How are you feeling?? (Nosy Parker again.)

Donette,
I do not presume to know what is best for you. In my case, what I eat is so much more important than what meds I take in regard to how I feel.
There are more and more babies being born and sent to Denver periatric Hosptial that can not digest the food we try to give them.
Member of our church, has an adult daughter who they took to Denver Hospital, because her stomach had shut down and was not digesting food.
They told her to fast, get off all meds and start over by introducing foods that would heal her stomach.
You have the strength and the power to eat only those things that will make you well!!!!!!
It does not seem fair, but that is what makes us well.


Much love to you and your family.

Lon

Thanks Lon. Hope you are getting along Ok today.
Fasting is a good tool. Once I'm off the nsaids, fasting
will be easier. It's like a merry go round sometimes. No fun.

Take Care,
I'm still praying for ya.
-Donette

Donnette,
I just realized my new doctor may be mor eunderstanding aobut fasting and then antibiotics...
I am wodnering how you feel today. I got a new breathing mask. more oxygen and wow do I have a headache again today..

I hope to get back to walking this week.

agape'
Lon

More oxygen and a headache? That is so awful. So did they see de-myelination in your brain? Were those the changes they saw?
My heart goes out to you.

My neck dislocates frequently and I managed to pinch a nerve that gave me vertigo for the last week. I have mostly been laying on my bed flat on my back with the blinds pulled. Any movement would cause the world to spin violently. I went to the physical therapist yesterday and the dizzyness is much improved.

I have felt in the last 2 weeks that I am stuck in an in between world. Too sick to live and not lucky enough to die. Then as I prepared my sunday school lesson for my 15 year-olds I came across this quote about adversity:

Orson F. Whitney wrote: “No pain that we suffer, no trial that we experience is wasted. It ministers to our education, to the development of such qualities as patience, faith, fortitude and humility. All that we suffer and all that we endure, especially when we endure it patiently, builds up our characters, purifies our hearts, expands our souls, and makes us more tender and charitable, more worthy to be called the children of God”

I am enduring it, but not so "well" at times.

take care my friend,
Donette

sorry your neck has been so bad as of late. i know the feeling.....i'm on my way to dr. E today to see what he says about my neck. slowly mine is coming off the flare from august; i still must drive everywhere with an icepack on my upper back, but at least that helps keep it all quiet.

i know i keep bringing this up, but only because it helped as much as anything else when my neck was giving me excruciating headaches: the "real ease neck support".....~20 minutes of laying on that on the floor and things eased up considerably.

http://www.amazon.com/Real-Ease-Neck-and...6611&sr=8-1

wish i could help you as much as you've helped me, first with the ribs, and then with reminding me of the mckenzie neck exercises.

the corner stretches also not only helped my ribs / shoulders but also if i pushed into the corner and pushed my head up like i was coming up out of the water after a dive, i could get my neck to go back where it needed to.

but mostly, like your PT, the chiro helped me through the worst of it more than anything. hope you get through yours soon as well. manual traction was very helpful at my worst. the chiro tried the machine and it did help, but it also hurt the back of my head but in a much more superficial way like a bruise that only lasted a day or so. but the relief from the traction lasted much longer than that.

i think i'm learning that for us its a multi-layer problem. the spondy causes the arthritic changes. the arthritic changes aggravate some all the time. but really aggravate when in a flare, as the inflammation makes things swell and thus press on the nerves more. then too the inflammation makes the joints loose and misalign, and then all HELLO breaks loose!

your strength, patience, and grace through all of this is to be admired. while i understand that GOD is building character through our suffering, i think i'm already enough of a character to last a lifetime!