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Joined: Feb 2006
Posts: 1,483
Silver_AS_Kicker
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Silver_AS_Kicker
Joined: Feb 2006
Posts: 1,483 |
good news  are they calling the next phase a phase 3 trial yet?
No families take so little medicine as those of doctors, except those of apothecaries.
Oliver Wendell Holmes
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Steve....I'm not sure about that but I'll ask at my next visit, she's really good about sharing info...at each visit they do 2 EKGs on me and draw blood(which is always a hassle with me because I have deep veins) but anyway, they always fill up 7 vials to be sent to Celgene...well yesterday, I saw that one of them was labeled ANA and when I asked Cindi about it, she said she would gladly share all of my results with me.....I forgot to get them before I left though but I'll get them when I go back, I'd be interesred in seeing if they've changed any since I've been on the medicine...of course I'll probably have to get you to interpret them for me.... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
Hi Sweetheart,
Sounds like this could really be promising I am sure hoping so for your sake as well as ALL of os out here.
I hope by the time you get this the nausea has subsided...Im just getting over an apparent stomach bug that has decided to set off an ENTIRE flare..I woke up yesterday and I swear I have Iritis in both eyes so trying to figure out what I should do there..wondering if my regular Dr. will prescribe some Pred Forte or if I have to go to an eye Dr....my body feels like I have been ran over by a truck so I have basically been in bed since sunday. I don't know I kind of feel like I am giving up, Im just so sick and tired of being sick and tired..lol
Of course there is ALWAYS something going on at The Hancocks..even when I was at my sickest I could look out the window and see Chevy (our cocker) trying to get romantic with Ella except he has been fixed...so go figure. The kids got a hoot out of it although I would shut the curtains and say STOOOOOOP..lol
Hope things continue to go well for you, please keep me in your thoughts..I went for the TB test yesterday now I have to go back thursday and friday and have it read...Im not sure Im going to make it to Remicade or until they figure out if they are going to pay for it or not...all the paperwork, info and acceptance probly looking at another 3 to 4 weeks easy peasy.
Hope your family is well.
Lots of hugs,
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Lisa...I'm so sorry to hear that you're having to go through this, I hope it clears out soon...rotten flares...and you're always in my thoughts and now in prayers too....yes, the nausea has passed and for 2 days in a row now, I wake up pain-free, yesterday it lasted until mid-afternoon...toady it lasted only until noon, but hey....I'm not complaining that it doesn't last all day though, getting even a few hours break from the pain makes it easier to cope with, I wish everyone could get at least that....  BTW...very funny story about Chevy & Ella...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
glad to hear that the medicine is working for you.
it gives the rest of us hope.
sue
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Sue, there's definitely a lot of hope for the future....we've come a long way, baby!!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Mar 2008
Posts: 3,233
Imperial_AS_Kicker
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Imperial_AS_Kicker
Joined: Mar 2008
Posts: 3,233 |
I hope the Apremi  lasts!
Dow
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Good one, Dow!!
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Well, here it is week 24 already, I went to my regular poke & prod this morning and I was told that the clinical trial has been extended so, I'll enter into Phase 3 next week...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Dec 2008
Posts: 718
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Dec 2008
Posts: 718 |
Hi Michelle,
Can you give the update / status of Oral Biologic as on today.
Regards.
Jay
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