Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group I'm Starting A New Oral Biologic!!

Hi Lon, I'm doing well actually, I have muscle fatigue sometimes but I'm sure that once my muscles get used to be worked again, that'll pass, just trading a pain for a pain. I know what you mean about bringing a puppy into a chaotic situation... You shouldn't have to pay any shipping charges on your dog though, I've been looking in your area...I know some wonderful breeders from back in my show days and if you decide on one that's not in your area, I'll get in touch with other GSDCA members and find out who's going to shows in your area and your pup can just hitch a ride, we do that a lot, it's no biggie and don't feel pressured to jump in, there are always opportunities to get a good dog when yall are ready. I hope Lin is doing well, my hugs to the both of you, Lon....

Hi Michelle:

i have been following this thread with hope for you and all of us. Let me add to the chorus here of people thanking your both for undergoing this trial, and FOR SHARING/REPORTING here so regularly!!

Every time i read or hear of this medicine, i silently thank you; your efforts put a "face on"/personalize these studies.

The most recent report i've seen is here:

http://www.mskreport.com/articles.cfm?articleID=2811

Of course the question we all have, that you cannot answer is
WHEN WILL THIS BE RELEASED ???

Hi
i hope you get stronger and stronger
i pray this medication works great for you for along time
we got sunshine i just spent 3 hours with a guy who had not seen the sun for several years. wow we take things for granted

lon

you are a buswy girl. have a good weekend?
i get so tired i almost stumble but all in all i am so very thankful for the blessings i enjoy i will keepin miind what you have said i owuld like a partner for when i walk and hike. also for when lin is home alone at night a well behave dog would get ther thorugh some lonesome times
thaks for all your encouragment
lon

Hi swim2...thank you so much for the words of encouragement and for posting the Celgene article! I can honestly say that my pain levels seem to be a little better since my dose was raised last week, let's just keep our fingers crossed that the progress continues! I really wish I knew when the release date is, I'm going to pick the doc's brain at my appointment tomorrow, if I find out anything, I'll post it as soon as I get in from the appointment...

I had a great weekend Lon...all the kids and grandbabies were here, we cooked, played boardgames and passed a really good time...this morning we all attended services together, I just love it when we can all be together and you're so right Lon, we take so many things for granted...life is good!

hi michelle,

any idea if others are doing as well as you are with the drug?

hope so,

an oral biologic, that would be wonderful,

sue

Hi Sue...the other study subjects are also doing great, swim2lakes posted the link to the study results above, very promising, the side-effects reported are almost non-existent and the dosage increase last week was across the board, the reason for the increase is to see if higher doses of the drug can provide relief to patients suffering from the inflammatory diseases, the manufacturer seems pretty confident that it will.... I've been on the higher dose for one week now and tomorrow my labs will be run to see if it has reduced my inflammation levels...

please let us know what your Lab results show ??
And also, wondering if the nausea has subsided since the dose increase.. here's HOPING.

Hi
It sounds like a good old fashioned family get together. I have had a lot of huge weeks, but we have had some real good life decisions. One man had about 12 family members come to see his baptism. It was really great!

We miss our family, so far away.
Lon