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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Just my weekly update...I just got back from my weekly appt. with my clinical trial doctor, my test results have continued to be good, my skin is still 100% clear and my energy levels are soaring, despite my new injury, I still have pain but I'm not sure if some of it can be attributed to all the recently introduced physical activity after being nearly stagnant for so long. At every visit, my blood is drawn, an EKG is done, a skin scoring test is performed and a three page pain questionaire is done, they're very thorough. 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF  
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Joined: Sep 2008
Posts: 745
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Sep 2008
Posts: 745 |
thanks for the b'day wish. is it a good or bad thing they put it off?
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Joined: Nov 2001
Posts: 18,186 Likes: 7
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2001
Posts: 18,186 Likes: 7 |
Michelle, I'm keeping my fingers crossed for you. It sounds so very promising! And exciting!!
Warm hugs,
Kat
A life lived in fear is a life half lived.
"Strictly Ballroom"
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Well Patty...from the view-point that I'm ready to get this behind me and I'm in pain, bad but it's best that the doctor is being safe and looking into the possibility of a drug interaction.... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Thanks Kat...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
I am glad that the clinical trial people are looking after you so well Michelle! And now I will be busy hoping that all goes well for you in surgery tomorrow!! Best of luck and wishes for smooth and speedy healing.  Hugs!! mig 
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Thanks Mig....I'm sure everything will be fine, even if not, I'll be oblivious to the fact....they put me on some pretty heavy meds this afternoon, I'm feeling no pain... 
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Ahhh, no pain is good!
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
It's great and to top it all off, Erica and Ali came and spent the day with me and then she fried pork chops with mashed potatoes, corn and gravy....Adam came over after work and then when Mike got home, we all ate and the kids cleaned up the kitchen.... It was really nice to kick back and relax....
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Apr 2002
Posts: 12,465
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Joined: Apr 2002
Posts: 12,465 |
Hey, now that you definitely deserved! What a good daughter to pitch in like that... who knows what sort of mess you would've made of the kitchen in that state.  lol More hugs for a good sleep and smooth sailing tomorrow! Let us know how you faired as soon as you're feeling up to it, please Michelle!
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