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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Kat and Molly, thanks for rooting for me, I hope it turns out to be all we've hoped for....the expectations on this are pretty high and so far, so good...I'm off to see the wizard...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Today marks the beginning of the third week in the clinical trials, my skin is completely clear now, it's amazing, to say the least! However, my pain levels are way up there, we have a cold front moving through and the temp went from the low 80s to the mid 30s(at night) in a little over 24 hours, so I've been experiencing terrible pain the last few days. It could be that I'm on the low dose, or maybe even on placebo, I'm thinking that maybe the higher doses would be for treating inflammatory diseases and I really don't think I'm on placebo because I'm seeing the same wonderful results in my skin as I did with Enbrel, it's basically 100% clear and the color of the skin in those areas is the same as the rest of my skin, it's usually really red from the inflammation.
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jan 2007
Posts: 86
Apprentice_AS_Kicker
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Apprentice_AS_Kicker
Joined: Jan 2007
Posts: 86 |
That is awesome that this new drug shows promise!! I hope that this goes to market soon. i have been on humeira for 3 months with decent results, and noticed that my skin and psoratic areas disappeared. I understand about the effect of weather on pain levels, hang in there!
S
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Sal, I hope this drug hits the market soon too, that would be great! I'm glad to hear that the Humira is working for you....take care...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Hi Everyone...I just wanted to drop in and update everyone on the clinical trials....I'm in week four now and the results have been fantastic! My skin is 100% clear now and my energy levels are the highest they've been in a few years! I've been traveling to meetings about the Doctor Fish Spa, doing presentations and have been putting in 16 hour days between that, the fish keep me hopping too and I've been catching up on things around here and I'm able to keep up without a problem, I'm doing things that I haven't been able to do for quite awhile now...I'm still having morning pain and stiffness and muscle and joint pain at night but I think that may be due to all of this activity and it goes away after I'm up for about an hour and I'm able to sleep at night...it's good rest too because I'm worn out after a long day....also, my stomach is healing up nicely! I hope it continues to go this well and that it becomes available to everyone soon, it is really making a difference! I've been swamped lately and I miss everyone but I have been dropping in and keeping up with yall....
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Sep 2008
Posts: 745
Decorated_AS_Kicker
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Decorated_AS_Kicker
Joined: Sep 2008
Posts: 745 |
Thats wonderful. I am so glad its working for you. I too hope it becomes available soon. But keep up the good work being a trail blazer for the rest of us and thank you.
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Joined: Nov 2007
Posts: 6,269
Addicted_to_AS_Kickin
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OP
Addicted_to_AS_Kickin
Joined: Nov 2007
Posts: 6,269 |
Thanks Patty....I know the results from the first phase of the study were very favorable, so I don't think there will be any problems getting it out there...I was amazed that everyone around me caught a virus and I managed to escape it, when I was Enbrel, I had a lot of problems with viruses, not to say that I didn't get wonderful results with it though, it worked great for me but I do like that Apremilast is a gene specific biologic. Take care...
Age 7- Kidney Necrosis Age 11-Bursitis Age 14-Costo Age 17-Psoriasis Age 32-Thoracic Outlet Syndrome Age 33-Sacroilitis Age 35-Interstitial Cystitis Age 40-AS Age 44-Fibro Age 44-PsA Age 45-MS Age 46-Sjogrens Age 46-Raynauds Age 47-PF
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Joined: Jan 2008
Posts: 21,346 Likes: 2
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Jan 2008
Posts: 21,346 Likes: 2 |
fantastic! hope it continues! thanks for letting us know,
sue
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Joined: Apr 2002
Posts: 3,607
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Joined: Apr 2002
Posts: 3,607 |
THanks for the updates Michelle. I'm always wondering how you're doing. So glad to hear you're doing terrific on the new med!
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Joined: Nov 2003
Posts: 8,190
Very_Addicted_to_AS_Kickin
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Very_Addicted_to_AS_Kickin
Joined: Nov 2003
Posts: 8,190 |
You are already at Superwoman status, I can't imagine all you can do if you are feeling better....YEA!
Your never far from my thoughts, Im glad you are doing so well.
Hugs,
Lisa
Speak kindly, Live simply, Care deeply, Love generously, and BLAH, HA, HA, LOUDLY! every chance you get.
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