Kickas.org Forums Ankylosing Spondylitis General Discussion #1 AS Web Support Group I'm Starting A New Oral Biologic!!

Hi Kat and Molly, thanks for rooting for me, I hope it turns out to be all we've hoped for....the expectations on this are pretty high and so far, so good...I'm off to see the wizard...

Today marks the beginning of the third week in the clinical trials, my skin is completely clear now, it's amazing, to say the least! However, my pain levels are way up there, we have a cold front moving through and the temp went from the low 80s to the mid 30s(at night) in a little over 24 hours, so I've been experiencing terrible pain the last few days. It could be that I'm on the low dose, or maybe even on placebo, I'm thinking that maybe the higher doses would be for treating inflammatory diseases and I really don't think I'm on placebo because I'm seeing the same wonderful results in my skin as I did with Enbrel, it's basically 100% clear and the color of the skin in those areas is the same as the rest of my skin, it's usually really red from the inflammation.

That is awesome that this new drug shows promise!! I hope that this goes to market soon. i have been on humeira for 3 months with decent results, and noticed that my skin and psoratic areas disappeared. I understand about the effect of weather on pain levels, hang in there!

S

Hi Sal, I hope this drug hits the market soon too, that would be great! I'm glad to hear that the Humira is working for you....take care...

Hi Everyone...I just wanted to drop in and update everyone on the clinical trials....I'm in week four now and the results have been fantastic! My skin is 100% clear now and my energy levels are the highest they've been in a few years! I've been traveling to meetings about the Doctor Fish Spa, doing presentations and have been putting in 16 hour days between that, the fish keep me hopping too and I've been catching up on things around here and I'm able to keep up without a problem, I'm doing things that I haven't been able to do for quite awhile now...I'm still having morning pain and stiffness and muscle and joint pain at night but I think that may be due to all of this activity and it goes away after I'm up for about an hour and I'm able to sleep at night...it's good rest too because I'm worn out after a long day....also, my stomach is healing up nicely! I hope it continues to go this well and that it becomes available to everyone soon, it is really making a difference! I've been swamped lately and I miss everyone but I have been dropping in and keeping up with yall....

Thats wonderful. I am so glad its working for you. I too hope it becomes available soon. But keep up the good work being a trail blazer for the rest of us and thank you.

Thanks Patty....I know the results from the first phase of the study were very favorable, so I don't think there will be any problems getting it out there...I was amazed that everyone around me caught a virus and I managed to escape it, when I was Enbrel, I had a lot of problems with viruses, not to say that I didn't get wonderful results with it though, it worked great for me but I do like that Apremilast is a gene specific biologic. Take care...

fantastic! hope it continues!
thanks for letting us know,

sue

THanks for the updates Michelle. I'm always wondering how you're doing.
So glad to hear you're doing terrific on the new med!

You are already at Superwoman status, I can't imagine all you can do if you are feeling better....YEA!

Your never far from my thoughts, Im glad you are doing so well.

Hugs,

Lisa